Not your typical start to a Go Fund Me page, I know.
She’s a mother, a dancer, and an artist. Also, one of my hero’s. Fourteen years ago, she began a long journey that was not her choice. It first started with heart issues. An irregular racing heart while sleeping, becoming fatigued, a compromised immune system, and memory deficiencies. In 2007, the first unsuccessful heart ablation was performed. Numerous and varied medications were equally unsuccessful. In 2009, her heart was shocked over and over to try to bring it back into normal rhythm. In 2011, a pericardial ablation had to be performed to rectify the previous one. It took nearly two years for her heart to beat normally after the surgery.
For the past several years, symptoms returned with a vengeance, and have not subsided. She deals daily with Neuro Cardiogenic Syncope (NCS), Postural Orthostatic Tachycardia (POTS), auto immune deficiencies, migraines, body aches, insomnia, and constant fatigue. On her worst day she lost consciousness twelve times. And no cures. No answers. No end in sight! All the while becoming seemingly worse and worse. But finally — a specific blood test revealed a specific answer. Advanced Chronic Lyme Disease, along with five other parasitic co-infections. Yes, really. Misdiagnosed for fourteen years, because Lyme Disease is known as the “Great Imitator.” Mimicking many other diseases, all of her symptoms were caused by Lyme Disease. The treatment for Advanced Chronic Lyme Disease is very aggressive and costly. One of the first things that is affected is the heart. And with an already compromised heart, treatment is dangerous, but there are no other options. Insurance does not cover Advanced Chronic Lyme Disease. Insurance will not pay anything. Yes. Really.
Kat is an amazing woman, and one of the best people I know. She’s not “like” family, she IS family. My hero! She has given up so much of her “normal” life. She gave up a business of 22 years, and now has to have someone by her side for simple everyday tasks. Her daughter is expecting twins in February. Kat will be a first-time grandmother. There is nothing more that she wants right now than to be able to hold her first grandchildren. She just wants some of her life back, but realizes she will never have her life fully back. Outwardly, most would never even know she was sick. She is a fighter, yet she will still be there to support her friends and family even when she is unable to lift herself out of bed most days. I had to convince her to seek help. If you can help, no amount is too small. If you cannot, please share her story, I would be eternally grateful, as would Kat and her family.