I have a personal story to tell and I must tell it. It lacks the alcohol of Pete Hammill's, the abuse of Angela's Ashes and Mary Karr's, the war record of Eisenhower or Churchill or the courageous profiles of John F Kennedy or maybe it doesn't.
It’s the story of a man, husband, father that takes my Parkinson’s diagnosis in stride(albeit shuffly); and with the help of music, humor, and charity begins to make a difference in the world, where I heretofore hadn’t. In doing so, I believe that the progression of my disease has slowed,due in no small part to my glass half full attitude, my looking for silver linings, my tireless efforts in fundraising and awareness, and of course, sinemet. I am celebrating the 7 year anniversary of my Parkinson’s Disease diagnosis -the day before my 50th birthday. While it has stripped me of my brisk walking pace, my dexterity, and my ability to hit a 12 footer(assuming I had it prior); it has enhanced my stamina , and given me a new sense of purpose. I now see the world in a new way. Each of us has issues! Everyone! My new PD glasses allows me to see it in people quicker than before, and appreciate their motivations in a much more sympathetic way. As we know the stories of the famous, we don't know the stories of the guy next door. But not knowing them doesn't make them any less heroic.
People have called me heroic, and I've laughed or have been embarrassed. My life has facets that are far from heroic but I've lived my life with PD with humor, energy , music , attitude and pills and I know that if heroic is too strong a word, exemplary might suffice. if I can be an example to anyone else about how to live a life with PD I would be honored.
This book, a labor of love, is virtually complete, the money raised goes towards the publishing and initial marketing campaign.
- Neal Siskin
- The Karp Family
- stephen benjamin
- Robin Rubinstein
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