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Help Ibria get healthy again

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Hello, my name is Philip. I am writing this because a very special little girl to me is in need of your help. My beautiful daughter, Ibria was diagnosed with a very rare type of cancer in her spine called A Germinoma Spinal tumor. This cancer is so rare that only 44 other cases have been discovered worldwide to date. Our personal nightmare with this cancer started last July, My 11 year old daughter came to me complaining about back pain which had started to bother her. I took her to Urgent Care and was quickly sent home with antibiotics for a UTI. After no results I took her to the hospital, one of the most accredited children’s hospitals in the state of florida mind you, who assured us that her pain was stemming from bad posture and lack of exercise. No tests. No exams. No X-rays. We decided we needed to see an orthopedic specialist, who pushed it off on physical therapy. With zero answers and her still having back pain daily, at times so bad she couldn’t move for hours, I took her back to the hospital. I had to beg for them to do at least an X-ray, which came back negative for anything out of the ordinary thus having them refer us back to the orthopedic specialist who was booked out 2 months. Home once again and her pain worse than ever I took her to the hospital a 3rd time refusing to leave until the doctors ran every test that I had begged them to run 6 months prior. These test confirmed a parents worst fear. Cancer. My beautiful 11 year old baby girl had a 92.6 mm tumor growing on her spine, leaving her unable to walk. immeditaly admitting her to surgery, the neurosurgeon team did an amazing job but unfortunalty could only remove 20% of the tumor. The tumor had intertwined and wrapped around her spinal cord leaving the team unable to remove more since it would leave her with permanent paralysis from mid waist down and a permeant catheter. Unable to condemn my 11 year old to a life of that our only option is a very long road of chemotherapy and radiation. Im asking anyone that is willing to financially help, even say a prayer would mean the absolute most to us. She is going to need a ton of love and support this next year and I want her to be able to get back to her happy child life as soon as possible. Thank you and god bless you.

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    Organiser

    Philip Dandreamatteo
    Organiser
    Titusville, FL

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