My name is Linda Artz. I am creating this account for my grandson, LJ (Bubby) McClenny. Bubby was born with an extremely rare form of Klinefelter's Syndrome 49 varient. This is a syndrome that can occur in one of every 80,000 male births. What makes Bubby's so rare is that he was also born with two "mirror" chromosomes. Not much is known about the additional "mirror" chromosomes and how it will affect him as he goes through life.
He sees a pediatrician, a cardiologist, an endocrinologist, and an orthopedist on a regular basis.
In addition, he has had occupational, speech, and physical therapy since he was six months old. So far, with all of this help and with a great Mom and Dad, he has been able to overcome big hurdles. Through it all, he has remained happy and good natured. Bubby is definitely a little angel sent by God as he enriches our lives everyday.
As you can imagine, all this medical help has been costly. His parents are both extremely hard working people. His Dad, Jarrod, works as many hours as he can to support his family, often 60 a week. His Mom, Amy, stays at home with Bubby in addition to their other two children, Chloe, 8 and Lily, 3. They have medical insurance which pays for most of the expenses but they have already personally paid $17,000 themselves and still owe $4000. On November 3rd, Bubby was taken to Cook Children's Hospital to have a plug implanted in a hole in his heart. Unfortunately, when the procedure started, it was discovered that Bubby's heart and cardio system is reversed so he will have to have heart surgery next week. Their cost for this will be $5000.
Jarrod and Amy have exhausted every other grant and charity that helps children and still the bills keep adding up. Any donation you can make would be a great blessing to them. Thank you and God Bless.
- betty Alvarado
- Troi Niehus
- Paul Schmidt
- Jacob Truesdell
- Paul Schmidt
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