- B
- D
I was born blind with cataracts, Aniridia (no iris in either eye), and limbal cell deficiency (a lack of cells that protect the cornea and prohibit the growth of harmful blood vessels). An iris works like the shutter of a camera - it allows just the right amount of light to make the perfect picture. The lack of irises in both of my eyes means that there is no filter that determines how much light is needed for me to see. I have to wear specially dyed sunglasses both indoors and outdoors to protect my eyes from almost all light. Imagine having both eyes dilated all of the time and you will have some understanding of my condition. My corneas have been damaged by blood vessels and scar tissue which developed over the years due to the limbal cell deficiency. The cataracts in my eyes need to be removed, especially the cataract in my left eye.
My ophthalmologist referred my to the Cincinnati Eye Institute in Cincinnati, Ohio, where over 50% of aniridia patients worldwide receive treatment. It is a truly remarkable place! Doctors at CEI can now successfully implant an artificial iris as well treat limbal cell deficiency with the use of stem cells. The artificial iris has been approved by the FDA. Unfortunately, the FDA has not provided an insurance code (a number which insurance companies use to approve a surgical procedure) for the artificial iris surgery and is not expected to do so for approximately two more years. This means that Medicare will cover only the cost of the cataract surgery and the limbal stem cell transplant. The cost of the artificial iris is $10,000 for each eye and must be paid in full before any of the surgeries can take place.
The doctors who examined my eyes at CEI expect my vision to improve significantly with the artificial iris/cataract surgeries and the limbal stem cell transplant. Because of the deteriorating condition of my eyes, they recommend that the surgeries take place as soon as possible. The surgery for each eye will take place in two stages covering approximately one year.
I am functionally blind. The possibility of regaining my sight is an overwhelming blessing. However, due to financial constraints on my part, I am unable to pay for the uncovered costs of the procedure not approved by insurance and the expenses incurred from trips back and forth to Ohio from South Carolina. My estimate of the total cost for each surgery is $13,000 per eye.
I am thankful for the opportunity to share my story with you. With your help I hope to be able to see again. I appreciate your interest and thank you in advance for any donation that you might wish to make.
My ophthalmologist referred my to the Cincinnati Eye Institute in Cincinnati, Ohio, where over 50% of aniridia patients worldwide receive treatment. It is a truly remarkable place! Doctors at CEI can now successfully implant an artificial iris as well treat limbal cell deficiency with the use of stem cells. The artificial iris has been approved by the FDA. Unfortunately, the FDA has not provided an insurance code (a number which insurance companies use to approve a surgical procedure) for the artificial iris surgery and is not expected to do so for approximately two more years. This means that Medicare will cover only the cost of the cataract surgery and the limbal stem cell transplant. The cost of the artificial iris is $10,000 for each eye and must be paid in full before any of the surgeries can take place.
The doctors who examined my eyes at CEI expect my vision to improve significantly with the artificial iris/cataract surgeries and the limbal stem cell transplant. Because of the deteriorating condition of my eyes, they recommend that the surgeries take place as soon as possible. The surgery for each eye will take place in two stages covering approximately one year.
I am functionally blind. The possibility of regaining my sight is an overwhelming blessing. However, due to financial constraints on my part, I am unable to pay for the uncovered costs of the procedure not approved by insurance and the expenses incurred from trips back and forth to Ohio from South Carolina. My estimate of the total cost for each surgery is $13,000 per eye.
I am thankful for the opportunity to share my story with you. With your help I hope to be able to see again. I appreciate your interest and thank you in advance for any donation that you might wish to make.

