
I have stage 3 esophageal cancer
Donation protected
I have not been able to eat or drink anything in over 3 months and have lost about 80 pounds since I started to feel something was wrong with me.
I tried real hard to find out what was wrong since September 2023 but all my doctors kept telling me that I had asthma and not to worry. Finally in January 2024 I went to the emergency room and had an endoscopy done and found out I had stage 3 esophageal cancer and the hospital I was in was not able to help me out as they were not capable of handling any type of surgery I needed. So my hunt was on for a doctor or hospital that can treat me. I went to UCLA because they were rated number 4 in the country but I spent a whole week there and they had me in ICU and they didnt do a thing for me except take my blood and put me in a room with black mold in the bathroom. And after UCLA canceled two seperate procedures, an endoscopy with ultra sound and a PET SCAN, I decided they didn't have my best interest and left.
Then I went to Loma Linda University and when I was in their emergency room they had a training nurse try to put anIV in my arm and she almost put the needle into an artery instead of a vein and she was shaking while she was trying to stick me, At that point I said wait a minute, stop, I am not a guinea pig, please get someone who knows what they are doing and then the RN that was there said, this is what we do, this is a learning hospital and she needs to learn how to do this.So, I left. I need professional care and not some student working on me. So now I am at home and still suffering and still can not eat or drink and am losing weight every day. The Mayo Clinic in Arizona said they would accept me as a patient but their costs are way out of my reach, Hence my plea for help here on GOFUNDME.
The Mayo Clinic is rated #1 in the world and has save thousands of cancer patients. I am hoping to be one of them.
I am only 58 years old and have 1 daughter that I would like to see again. I am a nice guy and have tons of friends all over the world and I also run the council for Native American Indian Progress Inc. cnaipinc.com and even though I am just one person, I feel like my life has way more meaning than to just die right now.
Please help me get the surgery and care I need at the Mayo Clinic. Every $1.00 helps.
thank you. May you all walk in peace and harmony as one with nature and the universe.
Scott.
update 2/23/24
Long story, Last week I went to San Antonio Hospital and yesterday morning I woke up in serious pain and my face had a big red blotch on it from the top of my nose to the bottom of my chin and I looked at my IV bag and realized that for the last 3 days they had me on a potassium iv bag and I remembered when I was in UCLA that the potassium iv solutions they gave me hurt real bad. So since the nurses wouldn't take me off the IVs I turned it off on my own and wouldn't you know it all the pain in my body and the red blotch on my face disappeared within an hour and so did my headache. So I went online and found out that when you mix strong pain medication and potassium iVs it can be fatal and even more so before or after any surgery. Plus every day since I've been there they kept asking me if I wanted Pepcid without realizing that Pepcid can cause esophageal cancer and since I already have it why would I take Pepcid. So from yesterday morning I stopped taking any of their meds or tests. Plus on Monday I had my feeding tube put in and on Tuesday they wanted me to go in for a port line surgery early in the morning without knocking me out and be awake while they cut open my chest. And they wanted me to sign a release form while I was on the operating table waiting to be worked on. They could have given me that paperwork the day before so I could read it but they strong armed in to signing it and I wouldn't because I thought I was going to be knocked out and I wasn't. So they rescheduled me for Wednesday and I waited all day till 530 and they never came to take me to surgery. So while I waited for them, I called city of Hope in Duarte to see if I could get in there for treatment and they said yes but I had to get a referral from my oncologist and I could be transferred to them internally as an inpatient and get expedited treatment because of my stage 4 esophageal cancer. Well this morning I waited till this doctor Need Talwar who was a representative from City of Hope and was my oncologist at San Antonio got there and I asked him to give me a referral to City of Hope in Duarte and he said no because he took me in as an outpatient at his office but he wouldn't be able to see me for 4-6 weeks. And this is where everything got sketchy. He got all flustered because I went and got accepted to City of Hope and everything set up to be transferred internally from hospital to hospital and he said he wasn't going to do it and then I said all I need is for you to go to the caseworker and have them call the caseworker at City of Hope in Duarte and refer me as a patient and they would take me in today. So we walked over the nurses station and he said stay right there and like, I'm part of this, so let me come over there too, he said stay there and I'm like dude so I followed him over there and he went inside the nurses station, then I stayed outside and he talked to the caseworker and he kind of whispered something to her and she turned around and said we can't do that, that's not protocol we can't do that!, I said what do you mean? this is my health we're talking about here.! And then she said we're doing the best we can, you keep turning down appointments, you were supposed to have a port put in yesterday and you and you said no, I said yeah after you guys didn't show up until like 6: 00 last night I had already made other arrangements because I can't wait for you guys to do all of this and then I have to wait another for 6 weeks before I can be seen by Dr Talwar. Well at that moment some security guard showed up and told me to leave the nurses station and go back to my room or they would call the police for me making a disturbance. I was in pain and calm because I could barely move with stitches in my gut. Then another guard showed up and they escorted me back to my room. At this point the nurses and doctor started filling my discharge papers and called the police to have me trespassed and kicked out of the hospital. Well while I was waiting in my room for the cops to show up Dr Talwar office called me to set up an appointment for 3 weeks from now to be seen. And I got super pissed but kept my cool and hung up on her. I packed my shit up and got escorted out the hospital and now I am home again. My life is way fucked. I may have only a month or so left to live considering I can't eat and my cancer went from stage 3 to 4 in 3 weeks and now it has spread from my esophagus to my liver and lymph nodes and I have nowhere to go without a referral.
So my funeral might be in a couple months.
Come have a party in my honor. RSVP
update 2/24/24
I just got off the phone with MD Anderson in houston texas and it looks like I am going to take a flight out there on Tuesday and try to get treatment from them but it is going to cost a gang load of money but my life is worth it. Right now I have about $5,000.00 saved and if I sell my car, thats another $7500.00 and the $1300.00 I raised from here is a start. So if you feel for me or care if I live, Please donate as much as you can so I can live for at least another few years and not a couple months. Thank you all for your donations. Love Scott
Organizer

scott stephens
Organizer
Chino, CA