I have a rare disability called Perrault Syndrome

I have a rare disability called Perrault Syndrome and I don’t know when my body deteriates, it does little by little. I am like the movie Benjamin Button. The way I describe my disability is you know how a baby learns to walk, learns to talk, coordinate and balance? Well I’m going backwards with no known knowledge of what will happen to me next. I spend what I get from the pension on what I need as time goes by. I see a top neurologist in Brisbane, see my GP regularly, I have just started rehab August 2020 and also just started to use my wheelie walker so I don’t look drunk as I walk. I do drive atm, one of the things I won’t be able to do in time. I do a car assessment every 2 years and it is a dream of mine to be able to still get around. So when the self driving cars are available, it will be something I need in the unknown future. 
The funds will help me for it is a strain for me to askmy family for money when I need it. I do try to do what i can.
My situation is not urgent but it’s a thought to starta fundraiser when I see my future not so steady. 

I am on multiple social media platforms that you can find me on