Hi, we are Kirsty and David, owners of a small venture, ‘brave ginger’ a mental health clothing company based in Clydebank. Although it’s very early days, we strive to give back to the community by committing to raising funds for local charities. Recently, David completed two days of the Kiltwalk. On day 1 , waiting for a train home, we had the absolute pleasure of meeting Tony, Carrie and their beautiful 3 year old daughter Grayce. She stole our hearts!!

Little Grayce was diagnosed with Spinal Muscular Atrophy Type 2 at the age of 14 months.

If she was diagnosed at birth, she would be meeting her milestones and very likely be able to walk.

In Scotland, they did not screen for this condition, but with her parents help, they helped campaign along with other SMA campaigners to get newborn screening for Spinal Muscular Atrophy added to the heel prick test in scotland.

You may be familiar with Little Mix singer Jesy and her twin babies recent SMA diagnosis too?

it is vital to raise as much awareness to help test all babies, who could be born with the condition and they would be able to access gene therapy from birth.

Tony and Carrie told us they have been refused the fitting of adaptations to their home by their local council. Our goal is to raise funds to provide a ramp and stair lift for Grayce.. which will make the world of a difference to the family!

Please help us to reach our target by donating anything you can. Both adaptations are expected to cost around £7k .. this will mean the world to us and the loveliest family to come together as a community and help them over the coming years by giving them this wonderful support!