- M
Hey there, If you already know Liz and have been following her story about Lil’ Bastard and Twisted Cyster, this is a donation page I decided to start to help out with some of the costs for her of traveling to Texas to remove the tumor and cyst. I have some first hand experience with this type of thing, Medical bills can eat up your saving in a flash. And it's scary. I know Lizzie has so many great friends who are constantly asking how they can help, So, I thought let's do a gofundme page to help ease the financial burden this is taking and has taken... I know the idea of donations, albeit really needed and appreciated, probably doesn't feel good to Lizzie. She's very proud. But that isn't a reason to not do one, the money is needed. A gofundme page to help ease the pain of worrying about money is important as we need Lizzie's full attention on getting LB and TC Gone (or as Lizzie would say "the fuck out!!"). I know Lizzie, Hal and Natasha will be forever grateful for any help you can provide, EVERY dollar helps. Thank you.. Louis
If you don’t know Lizzie's full story continue reading...
Natasha (Liz's daughter) writes Lizzie’s story in Natasha's own way...~~~~~~~~~~~~
Ever had something so incredibly obnoxious that it just wouldn’t leave you alone? Say an invasive weed that was taking over your beautiful garden. Sipping all of the nutrients out of the soil, spreading its roots and taking up valuable space. Well this is exactly like that. Well except instead of a garden its your brain, and instead of a weed its a tumor (Lil' Bastard) AND a cyst (Twisted Cyster), and instead of it just going away with some weed killer you need not one brain surgery but a SECOND brain surgery. On top of that, the gardeners (doctors) in San Diego did a crappy job of eradicating the weeds, or even just listening to you as you tried to get their help and attention. So, now you need to go ALL the way to Texas to find a competent gardener (doctor).
And now, Lizzies story in HER own way.
In 2017 I was training for an ultra trail marathon and I was getting super intense headaches. All of my doctors kept telling me that they were migraines. All of the other people around me were thinking that these “migraines” were due to stress. So, on I went with the yoga, and the relaxation, and the blah blah blah. That is until I ended up in the E.R. with someone telling me that they found something (a tumor that got named Lil Bastard) on my brain stem and that it needed to be removed. And so two days later it was mostly removed. Then I went to inpatient rehab where the doctors also did not listen to me and sucked monkey turds. And then I had radiation. And then I was on the road to recovery! That should be the end of it, right? Nope.
About a year later I was getting some more symptoms, so I told my doctors about it and they had it drilled into their head that it was JUST “migraines.” Not the cyst that was growing in my freaking brain; NOT the cyst that I was keeping track of with a spread sheet to document its growth and rate of change. Yes, I was project managing my own cyst and tumor (no one else was).
Okay so fast forward through a bunch of other bullshit, 3 different neuro-oncologists, multiple pain management specialists, and 2 different RE-FUCKING-NOWND hospitals, to me being tired of the bullshit and taking charge of my own damn life. And with that I flew out to Texas to MD Anderson and doctors jaws dropped as I told them about the bullshit that I have been going through. I kid you not, a fly could have buzzed right into their open mouths and tickle the back of their throat. ANYWAYS. They told me that they need to remove all of the weeds that are in my garden.
And they aren't messing around. The time is now. OK, really soon. Surgery is scheduled for June 18th. We'll be flying out to TX, staying at the hotel connected to the hospital. Well, actually, I'll be staying IN the hospital... duh. If all goes very, very well I should be home in a week.
We'll have to fly back out for suture removal and follow up visits. This is all VERY HAPPY path.
Thank you all from the bottom of my heart for any help you provide. I appreciate you all. You are my rock!! Without all the efforts from my family and friends, I would be a bigger mess than I am right now. This shit is really scary you know? You all keep me fighting and pushing and dealing with every little pain LB and TC bring. It's time to put an end to these miserable little Fuckers in my brain. Love Liz
If you don’t know Lizzie's full story continue reading...
Natasha (Liz's daughter) writes Lizzie’s story in Natasha's own way...~~~~~~~~~~~~
Ever had something so incredibly obnoxious that it just wouldn’t leave you alone? Say an invasive weed that was taking over your beautiful garden. Sipping all of the nutrients out of the soil, spreading its roots and taking up valuable space. Well this is exactly like that. Well except instead of a garden its your brain, and instead of a weed its a tumor (Lil' Bastard) AND a cyst (Twisted Cyster), and instead of it just going away with some weed killer you need not one brain surgery but a SECOND brain surgery. On top of that, the gardeners (doctors) in San Diego did a crappy job of eradicating the weeds, or even just listening to you as you tried to get their help and attention. So, now you need to go ALL the way to Texas to find a competent gardener (doctor).
And now, Lizzies story in HER own way.
In 2017 I was training for an ultra trail marathon and I was getting super intense headaches. All of my doctors kept telling me that they were migraines. All of the other people around me were thinking that these “migraines” were due to stress. So, on I went with the yoga, and the relaxation, and the blah blah blah. That is until I ended up in the E.R. with someone telling me that they found something (a tumor that got named Lil Bastard) on my brain stem and that it needed to be removed. And so two days later it was mostly removed. Then I went to inpatient rehab where the doctors also did not listen to me and sucked monkey turds. And then I had radiation. And then I was on the road to recovery! That should be the end of it, right? Nope.
About a year later I was getting some more symptoms, so I told my doctors about it and they had it drilled into their head that it was JUST “migraines.” Not the cyst that was growing in my freaking brain; NOT the cyst that I was keeping track of with a spread sheet to document its growth and rate of change. Yes, I was project managing my own cyst and tumor (no one else was).
Okay so fast forward through a bunch of other bullshit, 3 different neuro-oncologists, multiple pain management specialists, and 2 different RE-FUCKING-NOWND hospitals, to me being tired of the bullshit and taking charge of my own damn life. And with that I flew out to Texas to MD Anderson and doctors jaws dropped as I told them about the bullshit that I have been going through. I kid you not, a fly could have buzzed right into their open mouths and tickle the back of their throat. ANYWAYS. They told me that they need to remove all of the weeds that are in my garden.
And they aren't messing around. The time is now. OK, really soon. Surgery is scheduled for June 18th. We'll be flying out to TX, staying at the hotel connected to the hospital. Well, actually, I'll be staying IN the hospital... duh. If all goes very, very well I should be home in a week.
We'll have to fly back out for suture removal and follow up visits. This is all VERY HAPPY path.
Thank you all from the bottom of my heart for any help you provide. I appreciate you all. You are my rock!! Without all the efforts from my family and friends, I would be a bigger mess than I am right now. This shit is really scary you know? You all keep me fighting and pushing and dealing with every little pain LB and TC bring. It's time to put an end to these miserable little Fuckers in my brain. Love Liz
Organizer and beneficiary
Liz Helbock
Beneficiary