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This is for my Niece, Remi James Harwood, and her family Eva, Tim, and Piper (2 years old). First, we would like to thank everyone for all the thoughts, prayers, love, and support. In July, Tim and Eva noticed a lump on 3-month-old Remi’s upper thigh. They were in and out of Doctors, ERs, and Specialists with no answers. Remi’s condition continued to worsen and they were admitted to the hospital. After countless blood draws, IVs, MRIs, Ultrasounds, X-Rays, and doctor consults- they finally had an answer. On August 29th, 2022 Remi was diagnosed with a rare and potentially life-threatening condition called Kasabach-Merritt Syndrome which affects just 7 out of every 10,000,0000 children. No wonder it took so long to diagnose! Because her condition is so rare all of her medication is being prescribed off-label and a portion of her medical care will NOT be covered by insurance. Remi will require a 2-year medical plan to stabilize her condition. KMS can be treated, but never cured. We are hoping to raise enough money to cover Remi’s medical care and prescriptions. The last thing we want Eva and Tim to worry about is funding their daughter's care. Any donation would be greatly appreciated and we are ready for the road ahead in adapting to a new lifestyle for Remi James. Remi has the best support system in her life and we are so fortunate. Please continue to keep Remi and her family in your daily thoughts and prayers.
Organizer and beneficiary
Tim Harwood
Beneficiary

