Hudson Ireland medical expenses

This is my granddaughter Hudson she is 9 months old. She has been diagnosed with Congenital nephrotic syndrome Finnish type. Is the disease name. Her kidneys are leaking massive amounts of protein into her body. She is not able to fight of infections or grow like she should be because she isn't able retain protein. She is going on IV's starting now. She is going on Albumin to force proteins into her bloodstream where they should be, and then two rounds of lasix to pull fluid back into her bloodstream so she can pee it out, because she has been retaining so much of it. She will need to be placed on a special diet the rest of her life as well as medications. She more than likely will need to have ports put in her because she will need IV's repeatedly. And when she is able to she will need kidney transplants, dialysis and whatever else that entails . She has a life time of medical expenses coming her way. Please pray for her and her parents for this long road ahead.