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Meet Shamel Adrian who was diagnosed with Spinal Muscular Atrophy Type 2 at 14 months. SMA is a rare life-threatening gene killer that causes to have weakened muscles and damaged brain cells and the spinal cord. Without medication, further deterioration and eventual death will occur in the patient.

Shamel is required to be treated with Zolgensma, a gene therapy which is a one-time medication and also one of the world's most expensive treatments costing USD 2.2 million (SGD 3 million). Through this video, we want to raise awareness of SMA among all parents and share a glimpse of Shamel's daily struggles.

(This Gofundme Campaign is in support of the main campaign which is run by Ray of Hope. Specially opened for people living outside Singapore since they get tax-deductible by donating to Gofundme rather than Ray of Hope)

Once the target is achieved, we will be depositing that amount to Ray of Hope main campaign - .

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Thank you for your generous hearts.
Achintha, Dula and Shamel


  • Anonymous
    • $5 
    • 1 yr
  • Anonymous
    • $5 
    • 1 yr
  • Randika Jayatissa
    • $100 
    • 1 yr
  • Rusiru Tharuka
    • $10 
    • 1 yr
  • Harini Kappagoda
    • $50 
    • 1 yr

Organizer and beneficiary

Achintha Pilapitiya
Carole Park QLD
Lasantha Pilapitiya

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