Hope for Lor's Life ~Help Beat CIDP

As some of you know my daughter (Lori) was diagnosed with a rare debilitating disease in 2012.  Lori has a husband (Jason) and three beautiful young children (Keagan 12, Kyleigh 11, and Kamdon 6), and needs help beating this rare disease.  The rare disease is known as Chronic Inflammatory Demylelinating Polyneuropathy.  An autoimmune disease that attacks the nervous system that has no cure but is treatable through different treatments.  She has been scheduled for an evaluation at Northwestern University with Dr. Burt for a stem-cell transplant.  This cutting edge medical procedure offers a lot of hope for our family because Lori is no longer responding to her current treatment and over the last year her health has been slowly deteriorating.  She has limited use in her hands and has drop foot in both her feet.  The muscles in her legs and arms are serverly atrophied.  At times she deteriorates to a paralyzed state.  She has recently devoloped tremors, severve ataxia (no balance), and blurred vision.  She has a nurse coming to the house every nine days to give her steriods through an IV and has an IVIG at a very high dose which can have many serious long term side effects.  I am praying this procedure not only helps Lori go into full remission but also help to eliminate future home nurse visits.  She has recently lost the ability to carry out simple everyday tasks and work as a dental hygienist.  This disease is very frustrating for Lori and I wish I could simply take it away. 

I am so excited there is new hope for Lori by participating in a stem cell transplant at Northwestern University and praying everything will go as planned.  The treatment is called Hematopoietic Stem Cell Transplant.  Lori will be in Chicago for 2 months and undergo intensive Chemotherapy and harvest new stem cells that will be transplanted to give her a new immune system and new life.  

Since I can't take it away I am asking kindly for your help.  To help erase the financial burden that this disease is causing please consider contributing to help with the associated costs.  Costs that are not covered by insurance, travel expenses, and loss of wages.  Please pray for Lori's health.  She is looking foward to becoming the mother and wife she once was.

During a time like this, I am asking for your support. Any little contribution will help.  Please share with friends and family. Thank you for your thoughts, prayers and generosity. 

Lori's Mom ~ Bertie
  • Keane Blaszczynski  
    • 100 $ 
    • 75 mos
  • Karen Korson 
    • 100 $ 
    • 75 mos
  • Scott and Shannon Bartlett  
    • 40 $ 
    • 75 mos
  • Anonymous 
    • 100 $ 
    • 75 mos
  • Jeff Robinson  
    • 50 $ 
    • 75 mos
See all

Organizer

Bertie Scholz 
Organizer
Tomahawk, WI
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