This for her is like you or I living every day with second degree burns and getting them from nearly any physical contact that causes pressure or friction.
*More information about the reality of how devastating this disorder is can be found on www.debra.org
•Hope needs many specialized items as she grows and develops that are well above the cost of the things healthy kids require and are just not possible for us to get her without the help of our communities.
•While her insurance covers her medical stay expenses at Childrens' Hospitals, none of her other needs are met by the providers even for basic need items like an accessible safety crib that can be used to bandage her in the middle of the night without having to move her unneccesarily to a secondary location.
Every donation furthers our battle.
*if every person who reads this gave just $1, Hope would have everything that she needs.
God blessed us with this beautiful little life and we want to give her every single thing she needs.
Hope's List: (click these for more info)
Epidermolysis Bullosa Clothes
Transition Seat for Transport
Trainer for leg strength and Physical Therapy
Development of Sensory Input
These are just some of the things that she needs on an every day basis to develop to the level of a healthy child and for us to provide her with the needed level of care.
Help us to help her.
Annemarie Fleischman and Cecil Spangler.
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