Sophia's story started when I was 13 weeks pregnant . Sophia was diagnosed with a rare birth defect called Gastroschesis, where her intestines were on the outside of her body . During my pregnancy we were watched very closely by specialists, attended doctor appointments after appointments , and had ultra sounds every two weeks. After I just started to come to terms with what was going to happen when my little girl arrived and what it meant for us, we had another bomb dropped on us. At 22 weeks the doctors found out that she had a adsent part of her brain, a part that controls her eye sight and hormones. The doctors then sat us down and gave us another new plan on what would happen after she is born and what to look for, they gave us worse case scenarios. They warned me that my daughter could possibly be blind, have seizures, be autistic , and on top of everything have problems with her hormones, and possibly be medicated her whole life . At 34 weeks little Sophia went into distress and had to come by a emergency C section. When Sophia arrived there were specialist present as well as a transport team to take her to a different hospital because of the surgeries she was going to need, as well as the hospital she went to only delt with her birth defect . Only minutes old my little girl was taken from me . As soon as Sophia got to the hospital she went in for her first initial surgery , and that went well. It wasn't until 24 hours later that the doctors realized that part of her bowel had a lack of oxygen to it. Sophia was rushed in for a emergency surgery to get that part of her bowel removed . Sophia has been on morphene due to her pain of the surgery , and has had a breathing tube . Two weeks have passed allowing her bowles to heal up for the next surgery . Plans have changed from initially what would have been . In 3 weeks Sophia goes back in for another major surgery to get her bowels reattached. Due to Sophia's bowels being detached she has not been able to eat, she has been extremely uncomfortable, as she has a NG tube down her nose draining her stomach. Sophia is getting fed through a central line placed in a artery . Due to her being on long term TPN , her liver enzymes are starting to rise , which possibly indicate liver damage . Our expected stay before the complications was 6 weeks , and now we are looking at double the time if everything goes well. We are praying that everything goes smoothly and her pain finally ends, we also pray that we have luck on our side . Being a single mom and having a little girl going through of all of this I am unable to work do to me having to be in the hospital with Sophia day and night . As well as I do not qualify for maternity leave. The bills are starting to pile up , expenses from staying at the hospital , parking passes, food , gas everything is starting to stack up . Every dollar helps us more then you could imagine , please if you are unable to donate, please spread the awareness about Gastrochesis. Our lives have been turned upside down, but we are keeping our faith . God bless you all