Help Save Salahuddin — A 3-Year-Old Fighting Hunter Syndrome (MPS II)

We are doing everything possible in Pakistan, but now we need help for the next step.

Our son Salahuddin is 3 years old, and every day, we are trying to save the abilities he still has.

He is diagnosed with severe neuronopathic Hunter Syndrome (MPS II) —

a rare, progressive, life-threatening genetic condition that affects:

But there are early therapies, interventions, and clinical evaluations happening —

and we are doing everything we can to give him a chance.

⭐ What We Are Doing Right Now in Pakistan

We are not waiting.

Not delaying.

Not sitting idle.

Salahuddin is currently receiving:

✔ Weekly occupational therapy

✔ Speech & language therapy

✔ Behavior therapy

✔ Cognitive stimulation exercises

✔ Audiology follow-ups

✔ Nutritional and orthopedic monitoring

✔ Regular pediatric metabolic check-ups at AKUH

We are trying our very best to preserve his abilities for as long as possible.

But these therapies cannot stop the neurological damage caused by MPS II.

They can only support him — not treat the disease itself.

That is why we need to take the next step.

⭐ Why We Must Travel to the United States

Salahuddin has been entered into the early evaluation process at:

Saint Peter’s University Hospital, New Jersey (Genetics Department)

This center is currently reviewing patients with neuronopathic MPS II for:

Advanced neurological assessments

Cognitive evaluations

Brain imaging

Metabolic analysis

Potential consideration for gene-based therapy research pathways

This evaluation is critical —

it can determine his eligibility for treatment that can slow down or possibly stop neurological decline, something not available in Pakistan.

But all travel and stay costs for this process must be handled by us.

⭐ Why We Need Financial Support

To take Salahuddin to the US for evaluation, we must cover:

Estimated Costs:

Travel from Pakistan (child + parents): $4,000 – $6,000

Stay during medical assessments: $2,000 – $4,000

Local transport & daily living: $1,000 – $2,000

Out-of-pocket tests & consults: $2,000 – $4,000

Visa processing expenses: $500 – $800

Emergency reserve during stay: $500 – $1,000

Therapies, consultation etc in Pakistan: $500 – $800

We are working, saving, fundraising locally, and doing everything in our ability —

but the costs are too high for us alone.

⭐ How Your Support Will Help Salahuddin

Your donation will help us:

✔ Reach the US for neurological evaluation

✔ Get brain imaging & developmental testing

✔ Continue essential therapies during the treatment journey

✔ Cover travel + accommodation

✔ Prepare for additional metabolic or genetic specialist visits

✔ Reduce the financial stress so we can focus on our child

⭐ Meet Salahuddin

Salahuddin loves:

✔ balloons

✔ swings

✔ running in open spaces

✔ music

✔ and being close to his mother

He is full of love and innocence.

We just want to save the parts of him that the disease is trying to take away…

⭐ A Father’s Message

I never imagined writing a plea like this.

No parent is prepared to fight a rare disease that takes something new from their child every month.

But we are not giving up.

We are fighting with everything we have —

therapies, hospital visits, reports, endless emails, international consultations…

All we need now is support to reach the next step of his treatment.

If you can donate — thank you.

If you can share — thank you.

If you can pray — thank you.

From one parent to another —

help us give Salahuddin a chance at life.

With gratitude,

Shahabuddin Ghias

Karachi, Pakistan