Hope for Salahuddin - Fighting Hunter Syndrome (MPS II)

Assalamu Alaikum (Peace be upon you), my name is Shahabuddin Ghias, and this is my beloved little boy, Salahuddin. He is only 3 years old, and recently, our lives were turned upside down when he was diagnosed with Hunter Syndrome (MPS II), a rare genetic condition that affects both his body and brain.

Every day, Salahuddin faces challenges that no child should ever face. Simple things like walking, playing, or even expressing himself are becoming harder for him. Watching him struggle is heartbreaking, and as his father, I feel helpless. I want to give him everything — the therapies, the medical care, the hope — that he desperately needs, but the costs are overwhelming.

Salahuddin needs specialized therapies, regular medical treatments, and access to global clinical trials like RGX-121 gene therapy. These treatments are not just life-improving — they can be life-saving. But even basic supportive care is becoming impossible for us to afford, and every day that passes without proper care could make a permanent difference in his life.

I am humbly asking for your help. Your donations, prayers, and shares can make a real difference. Every contribution, no matter how small, goes directly to Salahuddin’s care — to give him a chance to speak, to play, and to live a life full of possibilities.

Please, from the bottom of my heart, help us give Salahuddin the care and hope he deserves. May Allah bless you abundantly for your kindness, make this journey easy for us, and ensure that Salahuddin never has to depend on anyone in his life.

How Your Donations Will Be Used

Every rupee and dollar collected will go directly toward Salahuddin’s medical care and related needs. To ensure complete transparency, here’s how your support will help:

Medical Tests & Doctor Visits:

Regular checkups, enzyme level monitoring, hearing and heart evaluations, and neurological assessments are essential for tracking Salahuddin’s condition.

Therapies (Speech, Occupational & Physical):

These therapies help Salahuddin improve mobility, coordination, and communication skills — vital for his quality of life.

Enzyme Replacement Therapy (ERT) & Related Treatments:

Although not available in Pakistan, we are exploring medical visa options for countries offering ERT or clinical trials such as RGX-121 gene therapy. Donations will help with application fees, documentation, and treatment preparation.

Medicines & Supportive Care:

Daily medications, nutritional supplements, and specialized items such as mobility support, hearing aids, and adaptive learning tools.

Travel & Medical Visa Expenses:

If Salahuddin is accepted into a treatment program abroad, funds will be needed for visa processing, travel, accommodation near the hospital, and living expenses during treatment.

Emergency Medical Support:

To cover any unexpected hospitalizations, infections, or procedures, which are common in MPS II children.