Hope for Phoebe: Help Us Fight Alexander Disease

Our daughter Phoebe was diagnosed earlier this year with a rare and life-altering condition called Alexander disease, a progressive neurological disorder caused by a mutation in the GFAP gene. This disease affects the brain’s support cells and leads to significant challenges with mobility, speech, coordination, and overall development. The diagnosis was heartbreaking—but we believe that God has a purpose in every detail of her life, and we’re doing everything we can to give her the best possible chance.

Recently, we’ve been presented with a promising but costly opportunity: monthly exosome therapy, administered under the care of a trusted provider. This treatment won’t cure the underlying mutation, but it offers a real possibility to reduce inflammation, protect her brain, support myelin repair, and potentially improve her quality of life.

Each treatment costs $2,000 per month and is not covered by insurance due to its advanced and still-developing nature. We’ve stepped out in faith, trusting the Lord to provide what we cannot, and asking humbly for the help of those who may feel led to walk alongside us.

If you’re part of a granting organization, a supporting church, or simply someone with a heart to give, would you prayerfully consider helping us provide this care for Phoebe? Whether through a one-time gift, ongoing support, or just sharing this need with others, it would mean more than we can express.

We believe in a miracle-working God—and whether that miracle comes through research, community, or quiet moments of grace, we are trusting Him each step of the way.

With gratitude and hope,

Rob & Ashley Caudill