Hope for Nova and Denver-Fighting Dravet Syndrome Together

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18 donors
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$1,715 raised of 

Hope for Nova and Denver-Fighting Dravet Syndrome Together

Hope for Nova and Denver-Fighting Dravet Syndrome Together

0% complete

$1,715 raised of 

18 donations
Donation protected
Our daughters, Nova (3) and Denver (1.5), are the bravest little girls we know. They both live with Dravet syndrome — a rare, catastrophic form of epilepsy that causes relentless seizures every single day. Some days, Nova can have hundreds. Denver is already showing the same challenges her big sister faces.

Dravet syndrome affects nearly every part of their lives. Simple joys like playing in the sun, visiting family, or even riding in the car can trigger dangerous seizures. We do everything possible to keep them safe — but the reality is, this rare diagnosis comes with staggering medical, equipment, and therapy costs.

Dravet syndrome is a beast. It brings frequent, prolonged seizures that can be life-threatening, along with developmental delays, mobility challenges, and daily medical needs. Caring for one child with Dravet is overwhelming — caring for two means every day is a battle we fight together as a family.

Your support can make an immediate difference.
Donations will go toward:
• Seizure monitoring devices and safety equipment
• Adaptive strollers and protective gear
• Speech, occupational, and physical therapy
• Travel costs to see epilepsy specialists
• Out-of-pocket medications and supplies insurance doesn’t cover

Our girls are joyful, silly, and full of love — and they deserve every chance to grow, play, and live as fully as possible despite Dravet syndrome.

If you’re able to give, please know every single gift helps, no matter the size. If donating isn’t possible right now, sharing this page means the world to us.

Thank you for standing with Nova and Denver — for giving them hope, safety, and a brighter tomorrow.

From the bottom of our hearts,
— The Smith Family
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Organizer

Addison Smith
Organizer
Lakeland, FL
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