Hope for Kyrie: ALD Treatment and Family Support Fund

My name is Diana Tirpak, and my eight-year-old grandson, Kyrie Vincent, has recently been diagnosed with a devastating and terminal illness called Adrenoleukodystrophy (ALD). This rare genetic disorder is rapidly progressing and, without aggressive intervention, will cause severe neurological decline. We are doing everything in our power to seek treatments that may slow the disease's progression, including traveling out of state for a potential bone marrow transplant.

Kyrie’s parents, Andrew and Ashten, are facing an unimaginable journey ahead as they balance caring for Kyrie and their newborn baby, while also navigating this terrible diagnosis.

The financial burden is quickly becoming overwhelming. We are raising funds to help cover the costs of extensive medical bills, travel and lodging to out-of-state medical facilities, gas, food, and everyday living expenses while they focus on caring for Kyrie.

Our family is leaning on our community during this incredibly difficult time. We are humbly asking for any support you can offer—whether it be through a donation or sharing this campaign with others who may be willing to help. Every bit will make a difference in easing the financial burden and allowing Kyrie’s parents to focus fully on his care and treatment.

From the bottom of our hearts, thank you for your support, prayers, and love.