Dear friends, family and kind souls,

I’m the mother of a brave and beautiful 10-year-old girl named Kiana. She was born with Pyruvate Carboxylase Deficiency (PCD), a rare and devastating genetic disorder that prevents her body from producing the energy her cells need to function. Every day, Kiana fights a battle against time—and we’re fighting right alongside her.

Right now, there is no cure for PCD. Kiana relies on a strict regimen of medications, supplements, and constant medical care just to stay alive. Even with these measures, her body struggles to keep up. Each passing day feels like we’re walking on a tightrope, knowing that without effective treatment, we may one day lose this battle.

But there is hope, and it lies in the work of Dr. Miguel Esteves at the University of Massachusetts. He and his team are developing a cutting-edge gene therapy that has the potential to save Kiana’s life. This therapy could correct the genetic defect at the root of her condition, offering her—and other children like her—a chance to live a fuller, healthier life.

This treatment is Kiana’s best and only shot at a future, but we are racing against time to fund the critical research needed to make it a reality. Without your help, this therapy may remain out of reach.

Kiana has shown us what it means to fight with courage and resilience. She’s non-verbal, but her eyes and her spirit speak volumes. Despite her daily struggles, she has a light that touches everyone around her. As her mom, my greatest fear is losing that light, and I will do everything I can to keep fighting for her.

But I can’t do it alone.

This isn’t just a fundraiser—it’s a lifeline. Your support could make the difference between life and loss, hope and despair. By standing with Kiana, you’re not only helping her but also paving the way for children worldwide who are fighting similar battles.

From the bottom of my heart, thank you for being part of this fight.

With love and gratitude,

Kathy