My name is Kaitlyn Schara, and I am asking for your help so that Jackson and thousands of others living with Nemaline Myopathy can have a chance at a better future. Every day families like ours face uncertainty because there are no treatments right now. I believe research holds the key to change, and your support can move that research forward.

I am raising funds for A Foundation Building Strength because their mission is to find treatments for Nemaline Myopathy. They fund the scientists and studies working to understand this condition, develop therapies, and bring hope to families who have waited far too long for answers. Knowing there are dedicated researchers pushing forward gives our family strength and purpose.

Your donation will support critical work that could one day lead to effective treatments for Jackson and others affected by Nemaline Myopathy. Even small contributions add up and accelerate progress, from laboratory discovery to clinical trials. Together we can help create the momentum this research needs.

Please join me in supporting A Foundation Building Strength. Your gift will make a real difference in the lives of families fighting Nemaline Myopathy and bring us closer to the day when treatments exist. Thank you for your compassion and for standing with Jackson.