Help Give Indie a Fighting Chance Against Rett Syndrome

I am writing this with a heart full of love and hope for my friend’s daughter, Indie Grace Moore. Indie is a 20-month-old baby girl, and she is a beautiful ray of sunshine.

In August of 2025, following months of uncertainty, her parents, Carmen & Ross received news no parent ever expects to hear: Indie has Rett Syndrome, a rare and devastating neurological disorder caused by a genetic mutation. There is no cure. But there is hope, and that’s why we’re here.

We are launching this fundraiser to raise money to help cover medical care, a wide range of therapies, and access to emerging gene therapy and other treatments that could change the course of Indie’s life.

Indie is pure sunshine. She has the sweetest soul, the brightest smile, and a giggle that melts your heart. She loves swimming, going on walks in her pram, cuddling her dog Benji, and watching Bluey and Bingo every morning. She’s curious, joyful, and full of life.

Like every parent, Carmen & Ross dreamed of watching their daughter grow up, learning to talk, to walk, to sing, and to chase her dreams. Rett Syndrome threatens all of that.

What is Rett Syndrome?

Rett Syndrome is a rare genetic disorder that almost exclusively affects girls. It leads to severe physical and cognitive impairments, often robbing children of their ability to speak, walk, or use their hands. It can also cause seizures, breathing issues, and lifelong medical complications.

Many children with Rett develop typically for the first year and then, gradually, everything changes. Skills they once had begin to slip away.

There is no known cure. But scientists and doctors are on the verge of something incredible.

The Hope: Gene Therapy and other therapies.

Recent breakthroughs in gene therapy and other therapies offer a glimmer of hope for families like theirs. Some therapies are now in clinical trials, and early results are promising, showing potential to dramatically improve, or even reverse, some of Rett’s most devastating effects.

But these treatments are experimental, costly, and not covered by insurance. Time is critical. The earlier the intervention, the better the chances. Experts predict a one time gene therapy treatment for Rett Syndrome could cost circa $1.7 million.

How Your Support Helps

We are seeking to raise money to cover:

Specialised medical care and therapies.

Travel to out-of-country specialists and clinical trial centers.

Early access or enrolment in gene therapy and other programs.

Equipment to support her development.

Ongoing costs not covered by insurance.

Every single bit helps. Truly.

Whether you can give £5 or £500, your generosity brings us closer to hope and gives Indie the chance at a brighter, fuller life.

️A Message From Indie’s Family

We never imagined we’d be here, writing this, asking for help. But when you’re a parent, you’ll do anything to fight for your child. Indie deserves that fight.

If you can’t donate, we ask you to share Indie’s story far and wide. Share it with your friends, family, coworkers, and anyone who believes in the power of science, compassion, and love.

Your support means more than we can express, it gives us hope. It gives Indie a chance.

Thank you from the bottom of our hearts for being part of Indie’s journey.

With gratitude and love,

Carmen & Ross

#TeamIGM