Hope for Holtyn: Help us cure TBCD

To follow Holtyns story visit us on TikTok @holtynsmomma

Hey everyone, this is Holtyn! Holtyn has a rare genetic disorder called TBCD (Tublin Folding Cofactor D) he got diagnosed around 17 months. TBCD has caused so many issues for Holtyn… Optic disc hypoplasia of both eyes, epilepsy, microcephaly, agenisis of the corpus callosum, low muscle tone, & feeding issues.

TBCD is a brain deteriorating disease & most kids don’t live past the age of 5. At this time there is no known treatment. But a cure is in progress! To say we are heartbroken is an understatement, but I will fight to my last breath for my son.

Doctors say Holtyn will never walk or talk but we have faith he will with prayer and gene therapy! We are praying for a cure for TBCD & it is being studied everyday in a lab. Unfortunately that’s very expensive! So we have took it up on ourselves to try to help raise money privately, so the studies can continue!

By donating you are not only helping Holtyn but the other beautiful children with TBCD. Every dollar helps & if you can’t donate, please spread the word & keep Holtyn in your prayers. Thank you