My name is Alina, and I am Emilia’s mom.

My daughter has an ultra-rare genetic condition caused by a mutation in the QARS1 gene, which affects her brain development and daily life.

On the third day after she was born,

she started having seizures.

Instead of taking our newborn baby home,

we found ourselves in the intensive care unit.

After a long and painful search for answers,

we finally received this diagnosis.

Today, Emilia cannot sit, walk, or speak.

Every day of her life is a fight,

for movement, for development, and for the chance to live.

We have done everything we can — therapies, doctors, and constant care —

trying to help her.

Now, for the first time, we have a real chance.

A chance to develop a personalized gene therapy

that could change her future.

This is a complex and very expensive process,

and the total cost is approximately $3,000,000.

We understand how overwhelming this sounds.

But for us, this is the only chance to help our daughter.

We are asking for your support

If you are able to donate — thank you from the bottom of our hearts.

If not, please share Emilia’s story.

Because the right person seeing this

can change everything for our daughter