Hear more about Connor's story

Connor’s Journey – My Galaxy

Our son Connor is raising money for n-Lorem Foundation, an organization developing individualized treatments for children with ultra-rare genetic conditions.

Connor has an extremely rare RHOBTB2 genetic mutation that affects his development, communication, movement, and everyday life. Things that come naturally to most children can require tremendous effort for Connor, but he continues to work hard every day with an incredible smile and determination.

Today, n-Lorem is working on an individualized treatment specifically for Connor, in collaboration with his team at St. Jude Children’s Research Hospital. Having these incredible teams working together gives our family hope for a future where Connor may be able to communicate more, gain greater independence, and experience an easier everyday life.

Each year, n-Lorem patients create a special piece of artwork to help raise awareness and funds. Connor’s artwork this year is called “My Galaxy.” Just like his painting, Connor’s world is colorful, unique, and completely his own.

Every donation, no matter the amount, helps support n-Lorem’s work for Connor and other children living with ultra-rare diseases.

Thank you for supporting Connor, his artwork, and our hope for a brighter future. ❤️