My name is Ellary (as you probably know by my username). I am raising funds for A Foundation Building Strength because I want to help find a treatment or cure for Nemaline Myopathy, a rare, neuromuscular genetic disorder that affects the strength of my muscles.

I also want to spread awareness and educate others on Nemaline Myopathy and disability in general. I am passionate about sharing information and educating communities to normalize disability, reduce stigma, and create supportive networks. I know that the community of A Foundation Building Strength has brought me many connections and lifelong friends, and I want people to feel like they are less alone.

A Foundation Building Strength is dedicated to advancing research toward treatments for Nemaline Myopathy. Donations support scientists, clinical research, and programs that connect patients to resources and each other. Every contribution helps move science forward and brings us closer to therapies that could change lives.

We would love it if you would play a part in supporting A Foundation Building Strength. Your donations will fund critical research and outreach in finding a treatment or cure. Give today to be part of delivering strength, awareness, and a brighter future.