Hope and Healing for Shyla's Rare Disorder

Shyla’s rare autoimmune care fund pays for travel, initial treatment, and local plans

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Hope and Healing for Shyla's Rare Disorder

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Hi, my name is Vicki Jackson. I am raising money for my daughter Shyla, age 22. Her second year of college at age 18 she became very sick. It has taken 4 years, hundreds of tests, traveling through 3 states, and more doctors than we can count seeking answers. Finally, we have a diagnosis. It is a rare autoimmune disorder called Autoimmune Autonomic Ganglionopathy. During the years of seeking answers, Shyla has lost the ability to walk more than a couple of yards at a time. Her bladder quit emptying, and she had to have a permanent tube surgically placed. She developed gastroparesis, which resulted in her having to have a GJ tube placed, which has also stopped working, and now she is on TPN for nutrition through her port. With this diagnosis, we now have hope. The problem is that all of the places we can go to for treatment are very far away from where we live. I have a good job with good insurance, but going for treatment will cause me to miss work. The money I am requesting is only enough for the initial trip and to get her on a plan that can be administered closer to home. If you can help in any way, even if it is only to share this with others that may be able to help, we would be so thankful.

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Vicki Jackson
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Florence, SC
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