Help Finn Fight SHINE Syndrome

We are coming together as a community to support a family we all know and love—the Husidic family.

Baggio and Kathleen (Fay) are incredible parents to two beautiful children, Finn and Quinn. Their lives, like many of ours, have been filled with love, laughter, and hope—but also unimaginable challenges. Their son Finn, just 9 years old, has faced a long and difficult medical journey. After years of unanswered questions, Finn was finally diagnosed with an extremely rare genetic disorder known as SHINE Syndrome. There are currently only around 350 known cases worldwide. Because of how rare this condition is, there is no established cure.

Finn’s Journey

Finn was born on September 22, 2016—a happy, healthy baby who brought so much joy to his family. Around 9 months old, his parents began noticing delays in reaching developmental milestones. With therapy, he made encouraging progress early on, and there was so much hope for the future. But as time went on, things began to change. Around age 4, Finn suddenly lost his ability to speak consistently. Shortly after, he developed severe sleep disruptions, behavioral changes, and other unexplained symptoms. Despite countless tests, doctor visits, and evaluations, answers remained out of reach.

In February 2023, Finn was diagnosed with epilepsy. While medication initially helped, his condition progressed. He now lives with intractable epilepsy, meaning seizures are not fully controlled by medication. These include dangerous drop seizures that have led to repeated injuries and emergency room visits. At just 9 years old, Finn is nonverbal, requires full-time care, and depends on others for all of his daily needs.

A New Hope: Stem Cell Therapy

After years of exhausting traditional options, Finn’s family has been researching and connecting with other families facing similar challenges. Through this, they’ve found hope in stem cell therapy.

This treatment offers the possibility of improving Finn’s quality of life—but it comes at a significant cost. Each round of therapy is approximately $10,000 out of pocket, and if successful, will likely need to be repeated multiple times per year.

How Your Support Helps

Your donation will directly support:

This is a financial burden no family should have to carry alone.

Why We’re Asking for Your Help

The Husidic family has shown incredible strength, resilience, and love through every challenge. They continue to fight every single day to give Finn the best life possible. Now, they need our help.

No donation is too small. Every contribution brings Finn one step closer to receiving the care he needs—and gives this amazing family a little more breathing room in an incredibly difficult journey.

If you’re unable to donate, sharing this page can make just as much of a difference.

From Fay (Finn's Mom):

“We will continue to do whatever we can to give Finn the best chance at a better life. We are excited for this journey while also feeling anxious. We are so grateful for all the love and support we’ve received over the years—it truly means everything to us.”

Please Donate and Share

Let’s rally around the Husidic family and show them they are not alone.