BIG UPDATE: Timmy has been spending the last 4 weeks in Louisiana at the Neurosolution Center of Lake Charles. Here he has been using exosomes, red light, sound waves, SoftWave and lots of other stimulation therapy. I believe Dr. Kyle and his team have found the key to unlock Timmy's brain and achieve what we were told would be impossible. He learned how to roll in 4 short days. He is starting to sit on his own, getting stronger, using less medication and eating by mouth better. His heart rate is starting to level out. He looks healthier, happier and full of life. He is starting to learn how to use his body and move the way he wants to. We will be coming back every 6 months for 2 weeks for the next couple of years. This is crucial for Timmy to keep learning as he grows. We got him here at the perfect time and thank you all for making this possible. Thank you all for sharing, praying and donating. I believe one day because of this journey, Timmy will be able to talk and thank you himself. We ask you to keep sharing and getting Timmy's story out there. His story will be one to share for a lifetime.

As most of our friends and family know, our 7-month-old son, Timothy, was diagnosed with a rare genetic condition, Pontocebellar Hypoplasia 2A. This news changed our family's life forever. Children with this diagnosis have a short life expectancy and very little, if any at all, motor function (crawling, walking, talking, eating on their own), sleep apnea, seizures, and low heart rates.

So far, Timothy is very behind on his milestones. He has a feeding tube, sleep apnea, low heart rate while sleeping, extreme muscle tightness, and neuro irritability. We have been navigating this diagnosis with doctors from Children's Hospital of Philadelphia, who have been amazing. But now we came across a clinic in Louisiana (Neurosolutions Center) that studies rare genetic conditions and helps families treat them to give them the best outcome they can have. The work this doctor and his clinic do is groundbreaking. They use intensive physical/occupational therapies, red light therapy, exosomes, and SoftWave regenerative therapies. All of this is non-invasive. They focus on building the sensory parts of the brain so that their bodies have a better understanding of how to use their motor functions, which is huge for children who have this diagnosis. They have seen great success working with other kids that have this diagnosis. Some of these kids are crawling, starting to walk, talk, eat on their own, and living seizure-free! It's shocking doctors all over the world.

However, these treatments come with a high cost of about $17,700 a week. None of this is covered by insurance. So, we are raising money to cover the medical expenses of this treatment and travel expenses. We will be traveling from Pennsylvania to the Neurosolutions Center in Louisiana for 6 weeks with our 3 children.

We have been trying to save money for our son's future medical expenses, I Wayne, Timothy's father, have been out of work due to a work-related injury for over a year. God has always provided for us, helped us find a way, and continues to bless our family. We believe that He will continue to do so, and that's why we are putting this out there. We were told our son will never walk, talk, or live past 11 years old. But for the first time since his diagnosis, we have hope. We have seen children just like Timothy do everything they were told they would never do, all because of this program.

Tiffany and I are very humble, always helping others around us, and now we are the ones asking for help. Everyone has been telling us to do a fundraiser since we learned about our son's diagnosis, but we didn't want to do so unless we absolutely had to. We aren't ones to ask for help, but now, we need to ask for help from anyone who is willing in order to help our child. So please, help us give our son the best chance he can have, and we are praying that one day our son's testimony will be one shared all over the world. We love and appreciate every single one of you, Wayne and Tiffy

Edit: alot of you have asked me for my venmo, my venmo is @WFabian , if you would rather use my phone number and you don't have it please message me for it, thank you