Mobility Van, home modificationsand caregiver help

Story

Hello, my name is Carla. On February 22, 2024 our world was rocked to the core and turned upside down . My husband Carl was diagnosed with ALS aka Lou Gehrig's disease. This is an awful disease and there is no cure. There are 3 medications available that “sorta” slow the progression. We can’t go home due to the fact our tiny house home is not accessible for a wheelchair and we have stairs going into the house until modifications can be made. It is also getting very hard to put him in and out of my small car. We are wanting to get some type of van that is accommodating to a wheelchair/motorized chair so that we can get him to and from appointments. I have been out of work going on 2 months and my FMLA is about to run out and I either have to return or resign(before I’m terminated) any help would be so greatly appreciated. May god bless you all Just a year ago Carl was running up and down a soccer field referring at least 2 games a night sometime 4 and 5 night a week! He was always in the yard doing something to make it better. Cutting the grass for neighbors that weren’t able to tend their lawn. Always on the go. He started to referee football last fall. He wound up having to have Cervical neck surgery in September and that went great. Then on Halloween of 23 he fell and broke his neck. Progress was a very slow go but seemed to be improving. I went back to work full time. He started to decline again late December/early January. His lower extremities started to swell to the point he became immobilized and after a week of that admitted to the hospital with blood clots. We stayed inpatient for 29 days. We then went to Vanderbilt in Nashville to see a Neurologist specializing in Neuro Muscular Disorders. This is when our world rocked. He was diagnosed with ALS. Our hopes and prayers are to be able to go home to our house, have transportation so he is not confined to one place for the remainder of his life. And that he can watch our grandchildren grow up a little more.