Medical needs for Paul jr MPs II

Please help!! My symptoms from Hunter Syndrome are starting to worsen. I am trying to raise money for medical needs. I am being referred to several different specialists that treat my condition out of town and one out of state. Some of these appointments are not covered by insurance.I have developed Heart problems as well as possibly needing spine surgery and also need a cochlear implant for my hearing, which is becoming harder to hear.

I am 26 years old and have hunter syndrome which is a terminal illness. I have an enlarge liver, spleen and heart. Stiffness of all my joints, growth stuntment, I am totally deaf in my left ear and only have 6% left in my right.  I am still trying to adapt with my hear loss. I am unable to speak due to a tracheostomy-6 years ago
I have weekly infusions. The enzyme that I am missing is infused  into my body every week. I will need these for the rest of my life or until they find a cure.

I am in need of having my vehicle handicapped equipped as well.
I am currently in College, due to my recent hearing loss and missing college classes my gpa went down and I lost all of my funding for college. I am a few classes away from getting my associates degree. The I would like to attend FGCU for my bachelors in Journalism. 


My Hobbies are going to the gym every day and working out with my friends, Going to country concerts, Hanging out with my friends and being with my family.
My favorite country singer is Carrie Underwood -my dream is one to meet her in person..lol
I Love writing and being an inspiration to others.

Donations

  • steven vega 
    • $15 
    • 15 mos
  • Anonymous 
    • $50 
    • 15 mos
  • Christian Colarusso 
    • $50 
    • 15 mos
  • Alex Levine 
    • $20 
    • 15 mos
  • Michael Saavedra  
    • $5 
    • 18 mos
See all

Organizer

Paul Hollenback Jr. 
Organizer
Lehigh Acres, FL
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