Hoist Eleanor to ease her pain

Eleanor is a remarkable girl who has overcome so much in her young life whilst having several life limiting conditions- Muscular Dystrophy, LVNC Cardiomyopathy, Lamin A/C gene mutation, RYR1 gene mutation, Severe Dystonia, Arthrogryposis, Multicystic kidney disease, Double Hip Dysplasia.

Despite all this, Eleanor is a smiley, funny and incredibly caring and compassionate young lady, always the first to help others and wanting to make the world a better place.

For the past couple of years Eleanor's conditions have deteriorated and she has had to leave college and spends a lot of time in her bed due to extremely severe pain caused by her double hip dysplasia. Eleanor's hip joints are deformed and her hip and thigh bones are grinding together. Eleanor is now unable to spend more than a couple of hours in her wheelchair before she is in too much pain and cannot even make the 4 hour round trip to see her specialists in hospital without sobbing in pain for the entire journey home.

The one thing Eleanor found that gave her brief respite from the pain and helped her to have some movement and exercise was her time in her hot tub. Unfortunately for the last year she has been unable to use her hot tub due to her hoist breaking and becoming unfixable. We now need to purchase a new hoist for Eleanor's hot tub to give her the relief and much needed hydrotherapy she so badly needs.

The cost for the specialist hoist is between £9000-10000.

Please help improve Eleanor's quality of life by donating, hosting a fundraiser or simply sharing this page and telling her story.

Thank you