Hello everyone!! I would like to introduce you to an amazing little boy named Caine Jones-Henderson who is 2 years old.
This story is very lengthy but most importantly knowledgeable, just as it is heartbreaking...March 29, 2018 at what would have turned out to be a regular OB appointment turned out to be a life changing day, Caine was diagnosed with Hydrocephalus (Aqueductal Stenosis) 19 weeks utero, from that point my appointments became more frequent. During this time I was terrified and very worried because I didn't know what to expect for my first son...After receiving very intense care for the remainder of my pregnancy to closely monitor this diagnosis of my baby boy, the day I delivered the diagnosis was confirmed to be true. Caine was born August 10, 2018, after being born he was rushed to the Neonatal Intensive Care Unit (NICU) after a few birthing complications due to his diagnosis, there he was put on the CPAP machine & shortly after oxygen, followed by a feeding tube. He spent at least a week on both & 15 days on the feeding tube, after seeing a speech therapist to help him learn to feed. Upon being released Caine went home 2 1/2 weeks later, YES WHAT AJOY!!! Following going home, Caine started in home occupational therapy through OPS & had MRI’s once a month. October 2018, on what could have been a normal day..turned out to be one at the e.r for a BULGING FONTANEL & his right eye continuously looking downward or inward, after careful evaluation it had been determined that Caine would need to see an Ophthamoligist for an Elongated Pupil & his eyesight due to his wondering eye as well. Approximately two days later after hours of the appointment it had been diagnosed that Caine is *Legally Blind* in his right eye (surgical terms include Coloboma of the Macula, Retina, and the Iris and Anisometropia) which would explain his inability to control it at the time. Caine now does in & out of home therapy, which has been tough due to the pandemic. There are a lot of restrictions put on children who have hydrocephalus as well as Developmental Delays but Caine is slowly but surely conquering some of those tasks of being an average kid. To ensure he is able to grow to his best ability and his brain can function at its fullest potential, Caine’s Neurosuergon has highly recommended an Endoscopic Third Ventriculostomy (ETV-An alternative surgical procedure that creates a bypass for the cerebrospinal fluid in the head that eliminates the need for a shunt) to create a pathway for the Cerebrospinal Fluid blockage. I am asking for your donation NO AMOUNT IS TOO SMALL for any out of pocket medical expenses, any needs he may need after surgery and spreading awareness as it is in Omaha,Ne there isn’t much awareness for the Hydro Warriors out there.
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