The Peterson Family

Our dear friends, the Peterson family, have recently experienced some devastating and life changing events.  3 years ago their 14 year old daughter started having concerning symptoms of fatigue, muscle weakness, inability to keep up with kids her age, difficulty running, walking, climbing stairs and tremors. Immediately Todd and Jena started searching for answers. After multiple doctors appointments, testing and trips across the country to meet with specialists, they received a devastating diagnosis of Spinal Muscular Atrophy (SMA). Their sweet Shaelie will require a lifetime of injection treatments- which are given through a spinal tap while sedated.  She recently started treatments and each dose of medication is $130,000.  She will require 7 doses the first year, and then a dose every four months for her lifetime. 

Although the Petersons do have medical insurance, the unforeseen expenses are overwhelming. Expenses such as physical therapy, equipment, swimming pool access (anything Shaelie can tolerate to keep the muscles she still has from atrophy), trips back and forth from Primary Children’s Hospital and meals, just to name a few. Not to mention the emotional and mental toll this has taken on their entire family. 

Just as Jena and Todd started to wrap their minds around what this meant for Shaelie, and for the whole family, their other two children Cydnie and Tate were diagnosed with the exact same diagnosis.  This came as a huge shock, as this is such a rare disease.  The likelihood of all 3 children having this is just unheard of and nearly impossible.  

With all 3 kids needing the same treatments, specialist appointments, hospital visits, etc.,  the family could use some financial help.  They are thankful for anything you can give, whether financial, emotional support, or a simple prayer.  This is an amazing family and we would love to help lighten their burden at this difficult time. They give so much to so many in need, and it would be amazing for them to receive the same.  You can donate money through Go Fund Me or Venmo (@Jena-Peterson-1) or feel free to drop off donation items for comfort baskets, items for their children during appointments, gas cards, grocery gift cards, meal gift cards, etc. to Lesley Daley or Jenn Culley.  Thank you so much for your support. Let’s show this family how deeply they are loved. 

PS- Jena documents their journey on Facebook if you’re interested in following along or learning more about SMA.