Donation protected
Kristina is currently bedridden, hardly able to stand up or walk at all and has two young children to look after each day while her husband works 2 hours away. It's been very difficult for them to find a routine spending 2 and 3 days a week going to doctors appointments. There are many days that Kristina is unable to mother from bed and they need to go mother in law's house where she is able to rest in bed and Granny takes the kids in with her daycare. It works out nicely on the days Kristina can't function.
This last week we had an MRI, CT Scan, Lumbar Puncture, and a bunch more bloodwork. Next week, Kristina will begin IVIG treatments for 5 days at the cancer center.
She is receiving injections of Vitamin B12, Iron infusions and a high dose steroidal treatment for 6 months. The steroid treatment is very harsh on her body and causes her to be sick and have sores and make her skin feel sun burnt. Her medical team consists of a neurologist, oncologist, pain management, physical therapy, and primary doctor with 2 and 3 appointments each week. Since her husband travels 2 hours each way to work, he is gone from 4am to 7pm, making travel arrangements sometimes difficult with him having to miss work. Her husband has had to use all of his vacation time for her appointments and is using FMLA when needed.
The Copays and Out of Pocket expenses are starting to take a heavy weight on the family. While we are waiting for insurance to finish on their end for treatment next week, we are aware there will be a down payment of $2,500. While this seems like a lot (because it is), it can cost up to $10,000 per treatment which makes it a $50,000 week next week and insurance will cover most of it, leaving us the down payment. Any donations received will be applied to Kristina's treatment. We are so appreciative and beyond grateful for such an amazing support system. $1, $5, $10 ... anything helps this family relieve a little bit of financial burden. Please share our journey. There are so many people that are considering the surgery that aren't aware of the long term complications and there are so many people in my condition, suffering from absorption. Share Our Facebook Page because Kristina needs the support and learn some tips that may help save someone else. https://www.facebook.com/groups/635530470313788/
As we know, money can be tight! If you could support us by sharing our story, praying, or by donating even just $5, we are beyond appreciative. Kristina and her daughter Abigail (6) are very caring, compassionate ladies with the biggest hearts. We pledge to pay it forward once I am feeling better and back on my feet.
Chronic Inflammatory Demyelinating Polyneuropathy (the chronic form of GBS) is a neurological order characterized by progressive weakness and impaired sensory function in the arms and legs. Kristina's symptoms include progressive weakness, numbness and tingling in the legs, loss of reflexes, fatigue, and tremors. Her weakness and most recent diagnoses of Pernicious Anemia and Iron Deficiency Anemia have made her completely bedridden for the last 2.5 months. Kristina is suffering from shortness of breath, bedridden, extreme fatigue, brain fog, unbalanced coordination, balance, anxiety, severe insomnia, chronic pain, poor digestion, malnutrition from vitamin B12, Iron, Copper, and Zinc deficiencies, bone marrow pains, neuropathic pain and sensory impairment.
This amazing woman. Is one of the strongest woman i know... She has gone from being a very active person since the day we meet 10 years ago. We rode our. Mountain bikes 14 miles a few times a week. We went on many hikes in the Colorado mountains for hours. And then one morning while at work. I received a call telling me she can't move nor feel her legs. After 8 days in ICU she was diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP).
After receiving 4 treatments of ivig and alot of steroids she regained felling and had to take almost 2 years of physical therapy to find out they had her doing the wrong kind. It was causing more harm then good. After that discovery they gave her aqua therapy. She regained hear ability to walk unassisted after 2.5 hrs. And upon SSI reexamination. They decided she was good go bk to work full time because she was able walk in the Dr appointment herself at the time. Since 2014 she no longer was on on SSI AND with my work. We traveled a lot and was unable establish her with new Drs. She has slowly went downhill since giving birth to our first child. In Sep 2018 i moved us to Oklahoma and took on a local job. In hopes of not moving or taking on the road jobs any more. Got her back inline with her Drs to find out she also has both kinds of B12 anemia and has to take iron transfusion and B12 injections to keep her levels close to normal and the first thing her neurologist asked, is if she was on SSI and when told no says, she should have never been taken off. 5 years of no SSI and the Medical bills stacks on stacks garnishing my checks make it hard covering all the Dr copays and medications needed from check to check.... But through all thus you can find her with a beautiful smile on her face, trying to convince all who ask with how she is feeling with a, " im ok". She has been my rock when needed and is my best friend. Kills me seeing her in this much pain and not able fix it myself..
This last week we had an MRI, CT Scan, Lumbar Puncture, and a bunch more bloodwork. Next week, Kristina will begin IVIG treatments for 5 days at the cancer center.
She is receiving injections of Vitamin B12, Iron infusions and a high dose steroidal treatment for 6 months. The steroid treatment is very harsh on her body and causes her to be sick and have sores and make her skin feel sun burnt. Her medical team consists of a neurologist, oncologist, pain management, physical therapy, and primary doctor with 2 and 3 appointments each week. Since her husband travels 2 hours each way to work, he is gone from 4am to 7pm, making travel arrangements sometimes difficult with him having to miss work. Her husband has had to use all of his vacation time for her appointments and is using FMLA when needed.
The Copays and Out of Pocket expenses are starting to take a heavy weight on the family. While we are waiting for insurance to finish on their end for treatment next week, we are aware there will be a down payment of $2,500. While this seems like a lot (because it is), it can cost up to $10,000 per treatment which makes it a $50,000 week next week and insurance will cover most of it, leaving us the down payment. Any donations received will be applied to Kristina's treatment. We are so appreciative and beyond grateful for such an amazing support system. $1, $5, $10 ... anything helps this family relieve a little bit of financial burden. Please share our journey. There are so many people that are considering the surgery that aren't aware of the long term complications and there are so many people in my condition, suffering from absorption. Share Our Facebook Page because Kristina needs the support and learn some tips that may help save someone else. https://www.facebook.com/groups/635530470313788/
As we know, money can be tight! If you could support us by sharing our story, praying, or by donating even just $5, we are beyond appreciative. Kristina and her daughter Abigail (6) are very caring, compassionate ladies with the biggest hearts. We pledge to pay it forward once I am feeling better and back on my feet.
Chronic Inflammatory Demyelinating Polyneuropathy (the chronic form of GBS) is a neurological order characterized by progressive weakness and impaired sensory function in the arms and legs. Kristina's symptoms include progressive weakness, numbness and tingling in the legs, loss of reflexes, fatigue, and tremors. Her weakness and most recent diagnoses of Pernicious Anemia and Iron Deficiency Anemia have made her completely bedridden for the last 2.5 months. Kristina is suffering from shortness of breath, bedridden, extreme fatigue, brain fog, unbalanced coordination, balance, anxiety, severe insomnia, chronic pain, poor digestion, malnutrition from vitamin B12, Iron, Copper, and Zinc deficiencies, bone marrow pains, neuropathic pain and sensory impairment.
This amazing woman. Is one of the strongest woman i know... She has gone from being a very active person since the day we meet 10 years ago. We rode our. Mountain bikes 14 miles a few times a week. We went on many hikes in the Colorado mountains for hours. And then one morning while at work. I received a call telling me she can't move nor feel her legs. After 8 days in ICU she was diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP).
After receiving 4 treatments of ivig and alot of steroids she regained felling and had to take almost 2 years of physical therapy to find out they had her doing the wrong kind. It was causing more harm then good. After that discovery they gave her aqua therapy. She regained hear ability to walk unassisted after 2.5 hrs. And upon SSI reexamination. They decided she was good go bk to work full time because she was able walk in the Dr appointment herself at the time. Since 2014 she no longer was on on SSI AND with my work. We traveled a lot and was unable establish her with new Drs. She has slowly went downhill since giving birth to our first child. In Sep 2018 i moved us to Oklahoma and took on a local job. In hopes of not moving or taking on the road jobs any more. Got her back inline with her Drs to find out she also has both kinds of B12 anemia and has to take iron transfusion and B12 injections to keep her levels close to normal and the first thing her neurologist asked, is if she was on SSI and when told no says, she should have never been taken off. 5 years of no SSI and the Medical bills stacks on stacks garnishing my checks make it hard covering all the Dr copays and medications needed from check to check.... But through all thus you can find her with a beautiful smile on her face, trying to convince all who ask with how she is feeling with a, " im ok". She has been my rock when needed and is my best friend. Kills me seeing her in this much pain and not able fix it myself..
Co-organizers (2)
Jason Manning
Organizer
Eufaula, OK
Kristina Manning
Co-organizer