- M
- M
Hello friends and family,
First, I need to apologize for not updating everyone on my current condition. I have been struggling with the idea of doing this again and find myself hiding. In October I developed ascites, a condition where your liver can't properly clean your blood. It takes the fluid from the blood and deposits it in the abdomen. Its very uncomfortable and doesn't go away unless you go to the ER and they drain the fluid, which happened. After this my Doc expressed how urgent it was to get my disease under control. I agreed to chemo. :(
On Thursday Nov 23 2018 I started introversion chemo. Im on a drug called Docexale. Its a plant based chemo that is kicking my butt. Round 1 was 100mg per meter sq or some equation like that. This round took my hair, my white blood cells and all my energy for 3 weeks. Round 2/3 we dropped dosage to 70mg. These were much more manageable, unfortunately it didn't seem be "attacking" the cancer. This week we increased the dosage to 80mg. All was well and good until 1 week out when my white blood cells (WBC) dropped to .900. 1000 is low but 900 is neutropedic. This has been a common theme in all my treatments. A balancing act of too much and not enough. I am still looking into trials, The criteria for these is so specific. I was shooting for one in Ohio and meant all the criteria accept that I lacked a "solid tumor in soft tissue." I search weekly and will do so until I find something that works.
Im doing ok. I gave up trying to work 2 full time jobs and choose to only teach ski school as it is the most flexible for my unpredictable health. I did start a small business this summer that has helped me keep myself busy. I have teamed up with a company in Cambodia that creates bags from reused cement, rice, fish and pig food bags. They are colorful shopping bags, wallets, duffel bags and purses. Check out the web site www.theworldscloset.com
I spent last summer at the local farmers markets and art shows. This summer I would love to travel to larger markets in bigger areas. First, I need to get through 4 more treatments.
I will keep you posted over the next 2 months of the progress of this showdown. I love the support and encouragement from so many people. Please keep the messages, cards and phone calls coming. I need you all!!!
Love and health
Amy
The pic above is from October, Im not ready to post a bald pic yet.
https://youtu.be/sWy-qrcdyyk Hello again everyone ,
Well here I am in southern California, not where I dreamed I would be, but you take life as it comes. As many of you may or may not know my cancer took a new face in February. A random liver biopsy confirmed that my cancer was no longer ER, PR + but now PR-. (estrogen and progesterone) These hormones are what the cancer has been feeding on for the past year. My medical team used hormone blockers to eliminate the food source but these sneaky little SOBS stopped using progesterone for food. They have found another food source in my body selecting my liver as the most flavor-able home. They have stepped on the gas peddle and are multiplying themselves...quickly.
WHAT THE HECK DO WE DO?
Well I've had enough! No more cancer! How is this going to happen? Here we go. Patrick (wonderful boyfriend) and I have driven to California to the Cancer Center for Healing. I found this clinic on an adventure to NY city for a second opinion, which flung me to Irvine CA. This centers' focus is on giving my immune system the tools to better battle the invading cancer in its multiple forms.
This is being done with IV medication, Herbal supplements, and specialized diet . I am receiving Mistletoe and Salicinium IV daily. The mistletoe is great for immune boosting. The Salicinium is a plant based extract. This complex glycome can not be absorbed by normal cells, cancer cells love it. Once the cancer cell absorbs the salicinium the layer of sugar dissolves and becomes cytotoxic. This removes the "cloak" and allows the immune system to ID the intruder and destroy it. WOW now I need to up my immune system.
REALLY COOL MEDICAL STUFF:
The day I arrived they drew blood for an RGCC test. The blood is sent to a facility in Greece where the cancer cells are exposed to multiple drugs, heat and radiation. The results of this test will help identify a more effective course of treatment.
THE MIND AND THE BODY
I also saw a homeopathic doctor that explained how many cancers are caused from a traumatic event in ones life. I told him about my dislocated hip and concussion in 2010. He very casually said "Yep that did it and you probably have parasites." After further testing he confirmed that I do have parasites in my liver and proscribed some terrible tasting tonic and 3 tinctures. Hoping this does the trick.
FOOD STUFF:
I have a full Pharmacy of pills now. Specific to what my immune system needs. Its a full day of pills and tinctures and drinks. Im also on Keto diet (high fat), No Lectins, No grain, No dairy, No corn, specific veggies, limited fruit, minimal sugar. Well shit! Pat is calling it the chipmunk diet. We are adapting and I did bring chicken and beef back into my diet. Its been frustrating and all I want is a DOUGHNUT!!! California is the home of asian cuisine and doughnuts.
PLAN:
I am determined to BEAT this. I have 15 rounds of salicinium and mistletoe combined with several oral pills. After the 15 rounds they draw more blood and send it to Greece. 17 days later Greece sends back a Vaccine. Yep, that's right, a vaccine they will administer at the clinic. 3 months later I will return for the follow up for testing to see how well my body is accepting the vaccine. The clinic has had great results with this protocol, they have many cases of cancer free patients. I know this will work!!!
WHAT HELP CAN DO:
I am so Thankful for everyone's love and support. This wouldn't be possible without such generosity. Here is a breakdown of what my donations are going towards
-Each round of salicinium is $575 per day
-Mistletoe goes up each day till my body maxes out. It is currently at $470 per day.
-The RGCC test was $2800
-We are holding out on other treatment to maximize funds until the RGCC test comes back with more information i.e. (ozone, hyperbaric chamber, sound therapy, hyperthermia)
From day 1 to now I have spent $12,355.
I have 11 days left. When I begin to panic thinking about the numbers I focus on some positive mantra "This is going to work, it is the right place to be, I will succeed." All help is appreciated, also love notes bring smiles to my face. Cancer hates smiles.I have attached a video and will continue video updates (I know how to do that now). If you have the Marco Polo app I would love a hello and clip of your beautiful faces. Each week brings good news with test coming back and I will keep you posted.
I am doing well, patrick is a great help and supporter of my decisions. We venture out of this heavily populated area oneach weekend to find a place to camp and ride bikes. Last weekend we learned a lesson in getting a campsite early or you end up on a one lane back road driving to the top of a mountain only to end up on the CDT sleeping in the bed of the truck. Great view the next day but cold night sleep with no shelter from the moon light. It was a great bike ride and adventure. This weekend we will head to another wilderness area for a bike ride and planned camping. It is keeping us sane and cost down.
Oh our living situation turned out great. A lady from the center is renting us a room in her home next to the beach.
ADVICE TO CANCER FOLKS:
Anyone out there that is battling this stupid disease I highly recommend the RGCC test. It tests the response of cancer cells to conventional medicines and alternative medicines. Take the guessing out of treatment find what will work for you. Beat it!
Love, Happiness and healing
Amy
First, I need to apologize for not updating everyone on my current condition. I have been struggling with the idea of doing this again and find myself hiding. In October I developed ascites, a condition where your liver can't properly clean your blood. It takes the fluid from the blood and deposits it in the abdomen. Its very uncomfortable and doesn't go away unless you go to the ER and they drain the fluid, which happened. After this my Doc expressed how urgent it was to get my disease under control. I agreed to chemo. :(
On Thursday Nov 23 2018 I started introversion chemo. Im on a drug called Docexale. Its a plant based chemo that is kicking my butt. Round 1 was 100mg per meter sq or some equation like that. This round took my hair, my white blood cells and all my energy for 3 weeks. Round 2/3 we dropped dosage to 70mg. These were much more manageable, unfortunately it didn't seem be "attacking" the cancer. This week we increased the dosage to 80mg. All was well and good until 1 week out when my white blood cells (WBC) dropped to .900. 1000 is low but 900 is neutropedic. This has been a common theme in all my treatments. A balancing act of too much and not enough. I am still looking into trials, The criteria for these is so specific. I was shooting for one in Ohio and meant all the criteria accept that I lacked a "solid tumor in soft tissue." I search weekly and will do so until I find something that works.
Im doing ok. I gave up trying to work 2 full time jobs and choose to only teach ski school as it is the most flexible for my unpredictable health. I did start a small business this summer that has helped me keep myself busy. I have teamed up with a company in Cambodia that creates bags from reused cement, rice, fish and pig food bags. They are colorful shopping bags, wallets, duffel bags and purses. Check out the web site www.theworldscloset.com
I spent last summer at the local farmers markets and art shows. This summer I would love to travel to larger markets in bigger areas. First, I need to get through 4 more treatments.
I will keep you posted over the next 2 months of the progress of this showdown. I love the support and encouragement from so many people. Please keep the messages, cards and phone calls coming. I need you all!!!
Love and health
Amy
The pic above is from October, Im not ready to post a bald pic yet.
https://youtu.be/sWy-qrcdyyk Hello again everyone ,
Well here I am in southern California, not where I dreamed I would be, but you take life as it comes. As many of you may or may not know my cancer took a new face in February. A random liver biopsy confirmed that my cancer was no longer ER, PR + but now PR-. (estrogen and progesterone) These hormones are what the cancer has been feeding on for the past year. My medical team used hormone blockers to eliminate the food source but these sneaky little SOBS stopped using progesterone for food. They have found another food source in my body selecting my liver as the most flavor-able home. They have stepped on the gas peddle and are multiplying themselves...quickly.
WHAT THE HECK DO WE DO?
Well I've had enough! No more cancer! How is this going to happen? Here we go. Patrick (wonderful boyfriend) and I have driven to California to the Cancer Center for Healing. I found this clinic on an adventure to NY city for a second opinion, which flung me to Irvine CA. This centers' focus is on giving my immune system the tools to better battle the invading cancer in its multiple forms.
This is being done with IV medication, Herbal supplements, and specialized diet . I am receiving Mistletoe and Salicinium IV daily. The mistletoe is great for immune boosting. The Salicinium is a plant based extract. This complex glycome can not be absorbed by normal cells, cancer cells love it. Once the cancer cell absorbs the salicinium the layer of sugar dissolves and becomes cytotoxic. This removes the "cloak" and allows the immune system to ID the intruder and destroy it. WOW now I need to up my immune system.
REALLY COOL MEDICAL STUFF:
The day I arrived they drew blood for an RGCC test. The blood is sent to a facility in Greece where the cancer cells are exposed to multiple drugs, heat and radiation. The results of this test will help identify a more effective course of treatment.
THE MIND AND THE BODY
I also saw a homeopathic doctor that explained how many cancers are caused from a traumatic event in ones life. I told him about my dislocated hip and concussion in 2010. He very casually said "Yep that did it and you probably have parasites." After further testing he confirmed that I do have parasites in my liver and proscribed some terrible tasting tonic and 3 tinctures. Hoping this does the trick.
FOOD STUFF:
I have a full Pharmacy of pills now. Specific to what my immune system needs. Its a full day of pills and tinctures and drinks. Im also on Keto diet (high fat), No Lectins, No grain, No dairy, No corn, specific veggies, limited fruit, minimal sugar. Well shit! Pat is calling it the chipmunk diet. We are adapting and I did bring chicken and beef back into my diet. Its been frustrating and all I want is a DOUGHNUT!!! California is the home of asian cuisine and doughnuts.
PLAN:
I am determined to BEAT this. I have 15 rounds of salicinium and mistletoe combined with several oral pills. After the 15 rounds they draw more blood and send it to Greece. 17 days later Greece sends back a Vaccine. Yep, that's right, a vaccine they will administer at the clinic. 3 months later I will return for the follow up for testing to see how well my body is accepting the vaccine. The clinic has had great results with this protocol, they have many cases of cancer free patients. I know this will work!!!
WHAT HELP CAN DO:
I am so Thankful for everyone's love and support. This wouldn't be possible without such generosity. Here is a breakdown of what my donations are going towards
-Each round of salicinium is $575 per day
-Mistletoe goes up each day till my body maxes out. It is currently at $470 per day.
-The RGCC test was $2800
-We are holding out on other treatment to maximize funds until the RGCC test comes back with more information i.e. (ozone, hyperbaric chamber, sound therapy, hyperthermia)
From day 1 to now I have spent $12,355.
I have 11 days left. When I begin to panic thinking about the numbers I focus on some positive mantra "This is going to work, it is the right place to be, I will succeed." All help is appreciated, also love notes bring smiles to my face. Cancer hates smiles.I have attached a video and will continue video updates (I know how to do that now). If you have the Marco Polo app I would love a hello and clip of your beautiful faces. Each week brings good news with test coming back and I will keep you posted.
I am doing well, patrick is a great help and supporter of my decisions. We venture out of this heavily populated area oneach weekend to find a place to camp and ride bikes. Last weekend we learned a lesson in getting a campsite early or you end up on a one lane back road driving to the top of a mountain only to end up on the CDT sleeping in the bed of the truck. Great view the next day but cold night sleep with no shelter from the moon light. It was a great bike ride and adventure. This weekend we will head to another wilderness area for a bike ride and planned camping. It is keeping us sane and cost down.
Oh our living situation turned out great. A lady from the center is renting us a room in her home next to the beach.
ADVICE TO CANCER FOLKS:
Anyone out there that is battling this stupid disease I highly recommend the RGCC test. It tests the response of cancer cells to conventional medicines and alternative medicines. Take the guessing out of treatment find what will work for you. Beat it!
Love, Happiness and healing
Amy