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Kayson our nephew was diagnosed with Leukemia January 29th 2019 at the age of 2.5 years old.
Here is the beginning of Kayson's journey from his mother's words:
"Monday the 28th we decided to take Kayson to his primary care doctor, because for a week or two we have been noticing that he had been looking more pale than usual, we kept dismissing this because of the winter and he has always had a fair complexion, but these thoughts kept resurfacing in my mind. Additionally, 3 days before taking him to the doctor we were noticing that Kayson wanted to sleep more and would request an extra nap or two through out the day, he did seem slightly more lethargic during the day but he was still active and playing. We kind of dismissed this change in behavior too, just thinking that he was a growing boy needing more rest. Monday morning Kayson again requested to take a nap at 8:00am only three hours after waking and I just had a feeling that we should call his doctors office to make an appointment basically to check things out. After the doctor gave a physical exam he referred us to get his blood drawn. Kayson was actually excited for this, yelling throughout the parking lot, "I'm going to get my blood drop". He had seen me in the weeks prior poke my finger to monitor my glucose levels for the gestational diabetes check and he was really fascinated by it.
Tuesday morning Kayson's doctor calls us and tells us to take Kayson to the ER as soon as possible. He didn't explain much over the phone but could definitely tell there was some urgency in his voice.
We got to the ER at about 11:40 am, and they proceeded to draw more blood and use different measuring systems then what they had used the day before. Several hours later and after several blood draws the ER doctor comes in and tells us, "Well, I think I know why your doctor sent you down here. As of right now this is looking like leukemia, we are still doing more tests to find out more". This is when the tunnel vision sets in, everything after this seemed to happen in a blur. Approximately 30 to an hour later the ER doctor comes in as tells us that more blood has come back and there appears to be 'blasts' in his blood. Josh and I didn't know what this meant at the moment but what it told the doctors was this was without a doubt leukemia.
Our stomachs dropped and the tunnel vision intensifies even more, Josh or I cannot make eye contact with one-another and didn't even say another word for another hour, I just held Kayson while he slept in my arms. A doctor from the oncology department came and spoke with us in the ER, he explained that there were several different types of leukemia, and right now they don't know which one he has yet. He gave us a brief breakdown regarding the next steps in starting his treatment. He informed us that the next day Kayson would go into surgery to get a chest port placed (to allow for blood draws, medication and fluids to be delivered to him without having to be poked each time, both of his arms were already bruised at this time from the blood draws just from today), Kayson would also be getting a bone marrow aspiration to check to see if the cancer spread into his spinal fluid and to also get more information on which type of Leukemia Kayson had, in addition he would get his first chemo injection into his spine (even if there wasn't signs of any blasts in his spinal fluid they treat regardless).
At about 7:50 pm they let us know that Kayson had a room available up stairs in the oncology department. By 8 pm we were in our room, and Kayson received his first blood transfusion. The roller coaster of changes began."
Kayson and his family have a rough couple of years ahead of them with a lot of ups and downs. Any amount helps their family cover expenses that are not covered by medical insurance. They are working to bring together the best medical team for Kayson which will provide him with wrap around services to reduce the side effects from his chemotherapy and prevent the reoccurrence of Leukemia or additional cancers which he is at a heightened risk for.
Thank you for your help keeping Kayson on the right track with his recovery.
Thank you so much for reading Kayson's story. During this difficult time his family appreciates any prayers for his continued recovery. If you are not able to make a monetary donation his family asks that you donate blood (Kayson has already had 8 blood transfusions), spread awareness of the organizations that support families affected by childhood cancer such as ACCOIN (American Childhood Cancer Organization Inland Northwest) or volunteer your time to these organizations if possible. They love and appreciate each and every one of you.
Kayson our nephew was diagnosed with Leukemia January 29th 2019 at the age of 2.5 years old.
Here is the beginning of Kayson's journey from his mother's words:
"Monday the 28th we decided to take Kayson to his primary care doctor, because for a week or two we have been noticing that he had been looking more pale than usual, we kept dismissing this because of the winter and he has always had a fair complexion, but these thoughts kept resurfacing in my mind. Additionally, 3 days before taking him to the doctor we were noticing that Kayson wanted to sleep more and would request an extra nap or two through out the day, he did seem slightly more lethargic during the day but he was still active and playing. We kind of dismissed this change in behavior too, just thinking that he was a growing boy needing more rest. Monday morning Kayson again requested to take a nap at 8:00am only three hours after waking and I just had a feeling that we should call his doctors office to make an appointment basically to check things out. After the doctor gave a physical exam he referred us to get his blood drawn. Kayson was actually excited for this, yelling throughout the parking lot, "I'm going to get my blood drop". He had seen me in the weeks prior poke my finger to monitor my glucose levels for the gestational diabetes check and he was really fascinated by it.
Tuesday morning Kayson's doctor calls us and tells us to take Kayson to the ER as soon as possible. He didn't explain much over the phone but could definitely tell there was some urgency in his voice.
We got to the ER at about 11:40 am, and they proceeded to draw more blood and use different measuring systems then what they had used the day before. Several hours later and after several blood draws the ER doctor comes in and tells us, "Well, I think I know why your doctor sent you down here. As of right now this is looking like leukemia, we are still doing more tests to find out more". This is when the tunnel vision sets in, everything after this seemed to happen in a blur. Approximately 30 to an hour later the ER doctor comes in as tells us that more blood has come back and there appears to be 'blasts' in his blood. Josh and I didn't know what this meant at the moment but what it told the doctors was this was without a doubt leukemia.
Our stomachs dropped and the tunnel vision intensifies even more, Josh or I cannot make eye contact with one-another and didn't even say another word for another hour, I just held Kayson while he slept in my arms. A doctor from the oncology department came and spoke with us in the ER, he explained that there were several different types of leukemia, and right now they don't know which one he has yet. He gave us a brief breakdown regarding the next steps in starting his treatment. He informed us that the next day Kayson would go into surgery to get a chest port placed (to allow for blood draws, medication and fluids to be delivered to him without having to be poked each time, both of his arms were already bruised at this time from the blood draws just from today), Kayson would also be getting a bone marrow aspiration to check to see if the cancer spread into his spinal fluid and to also get more information on which type of Leukemia Kayson had, in addition he would get his first chemo injection into his spine (even if there wasn't signs of any blasts in his spinal fluid they treat regardless).
At about 7:50 pm they let us know that Kayson had a room available up stairs in the oncology department. By 8 pm we were in our room, and Kayson received his first blood transfusion. The roller coaster of changes began."
Kayson and his family have a rough couple of years ahead of them with a lot of ups and downs. Any amount helps their family cover expenses that are not covered by medical insurance. They are working to bring together the best medical team for Kayson which will provide him with wrap around services to reduce the side effects from his chemotherapy and prevent the reoccurrence of Leukemia or additional cancers which he is at a heightened risk for.
Thank you for your help keeping Kayson on the right track with his recovery.
Thank you so much for reading Kayson's story. During this difficult time his family appreciates any prayers for his continued recovery. If you are not able to make a monetary donation his family asks that you donate blood (Kayson has already had 8 blood transfusions), spread awareness of the organizations that support families affected by childhood cancer such as ACCOIN (American Childhood Cancer Organization Inland Northwest) or volunteer your time to these organizations if possible. They love and appreciate each and every one of you.

