My little girl is 2 years old age and suffers with nocturnal epilepsy and also syringomyelia. She is needing some monitors so we are able to get control over her seizures to reduce the affects it causes for her. Currently in the process of starting her 3rd medication. To see if it can control her epilepsy. The epilepsy monitor will help our family so much. But also will help her.
Syringomyelia is a progressive spinal cord disease. India already has some of the symptoms. It can affect her walking but also sensitivity to hot and cold. It's a very scary condition which will affect her life massively. Although India suffers with these she is a clever little girl who is a bundle of energy. Her smile makes our hearts melt. She complains at nothing.
Rossington, Yorkshire and the Humber, United Kingdom