Her Fight is Our Fight - Help Baby Maya Fight CDH
If you’re like me and don’t know quite exactly what CDH (Congenital Diaphragmatic Hernia) is. I have attached a link as well as a video at the end. But for now I’m going to tell you what CDH is to me, to us, to Maya.
April 9, 2020 - My brother and his wife created a video group chat on Facebook to tell us all at the same time they were having a baby! This was one of the best moments of my life, my brother, my best friend is having a baby and I’m pregnant! My first thought was wow they are going to be best friends just like we always have been!
July 11, 2020 - My brother and his wife (I don’t even know why) let me plan a gender reveal party the same day I made a appointment to find out the gender! They sprayed paint filled water guns at each other and yup - IT’S a GIRL - this wasn’t a ultrasound at the doctors office - the ultrasound was at a baby moments they specialize in early gender reveals!
July 22, 2020 - I’m at work it’s a normal Wednesday morning. Michael and Madison have their 20 week appointment with her OBGYN. They called me after their appointment and no one said anything, I just hear crying and my brother gasping for air. Something wasn’t right with the baby she had CDH but none of us knew just how bad it would be. We didn’t even know what it was!
We all joined support groups on Facebook, watched videos, and read medical articles. We found out CDH is rare, occurring in one out of every 2,500 to 3,000 births and 800 out of every 1,600 babies survives.
Due to Maya having CDH, Madison and her mother will be relocating to Philadelphia in a few weeks - where she will be delivering Maya at CHOP - Children’s Hospital of Philadelphia. Michael will have to stay here for now and work, until it’s closer to Madison’s due date.
After birth Maya will be immediately put on a ventilator until she is stable enough to undergo surgery. This is one of possibly many surgeries Maya will need to correct the hernia. This also means a extended NICU stay.
As Maya continues to grow in her mommy’s tummy we will be able to provide more information and details of what life will be like for Madison, Michael and Maya.
Please consider donating or sharing Mayas story, anything helps. 100% of the money will be going to Madison and Michaels expenses for Mayas surgery and recovery.
After Maya is born Michael, Madison and Mayawill have to stay in Philadelphia until Maya is at least two months old. They will have many expenses here for their house and in Philadelphia.
We all appreciate your support, donations, and prayers. Thanks for being apart of her pack #mayaslions
Childrens Hospital of Philadelphia CHoP CDH https://www.chop.edu/conditions-diseases/congenital-diaphragmatic-hernia-cdh 
