Our beautiful girl was unknowingly born with a condition called chromosome 1p36 deletion..
At 5 months old she suffered with infantile spasms, it was the worst thing ever to see your baby have a spasm and not be able to do anything about it. Her father was in Afghanistan at the time and had been there since she was 2 weeks old. Luckily he was sent home to be with us while she was treated with steroids and went through many test's. It was then we found out about the chromosome deletion. Our whole world fell apart when the doctors listed all the things she would probably never do.
However Lucia is a very strong and stubborn little madam, she is out to prove the doctors wrong but she needs a little extra help to push her in the right direction.
We have sent her to some private physiotherapy sessions which have been amazing , we have found a group of people that believe she will walk.
Unfortunately this therapy isn't cheap, which is why we have set up this page. We will soon try and organise some fun fundraising events too, to help pay for this therapy and get our little girl not walking but running, skipping and jumping. ❤
Then we will tackle speach
DonationsSee top donations
- Gemma Bone
- Gary Butler
- Tom Vardy
- Dave and Charlotte Barstow
- Catherine Harvey
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
Contact us with your questions and we’ll answer, day or night. Learn more