Help Katoya Recover from SJS, TEN Disease

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$10,639 raised of 50K

Help Katoya Recover from SJS, TEN Disease

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I'm sharing my story to the world because no human should ever have to suffer the pain I have endure the past 24 long days. Hello world my name is Katoya Unique Kinsey and I am a Survivor. I wrote this testimony last week sitting in bed at the burn unit ICU AT INTEGRIS BAPTIST HOSPITAL in OKC. Friday Dec. 18th I was discharged from the hospital and was sent home for the holidays! God does miracles everyday, I AM A BELIEVER AND A TRUE WITNESS.

Monday the last week of November I experience a migraine and menstrual cramps like no other. I took one 800mg ipheprofen to help with pain. Tuesday I took one more pill because my headache became worst. It felt like I got hit in the head ten times with a bull dozer. Wednesday morning before work, I went to my local clinic for migraine and itchyness on belly. They recommended  lotion and gave me antibiotics and steroids shot in butt. They prescribed five meds to help with ear infection and some other things. Tuesday I went back to clinic be my itchyness spread to my arms and red bumps appeared everywhere. They gave me another shot and suggested I follow up on Friday Dec 1. At 830am although my appointment was at 1130am Dec 1 I went back and immediately they sent me in an ambulance to Mercy ER hospital. Mercy immediately arranged for me to be transferred to burn unit at integris Baptist and thought I may have something called Steven Johnson syndrome. Fast forward I will show the picture of my body transformation from Dec 1 to now. I have spent 15 days in ICU, I have been transferred to five different rooms, I have been mistreated by staff, I have been provided wrong medication on "accident" that has caused me more pain, I have lost my vision several times, I have been hooked on oxygen, I have stopped breathing several times in my sleep, I have been on a feeding tube for several days that choked me and almost killed me on Dec 12. Dec 13th I had a seizure and lost my voice.  I have been diagnosed with Steven Johnson disease, ten disease, crgp migraine,  I have thickening arteries in my brain that they unexpectedly found that has nothing related to Steven Johnson disease. I experience my first seizure several days ago, lost all senation, finally began to talk and sound retaryed when I speak. My skin began to sloth which means I lost all my skin on scalp, face, arms, stomach, chest, butt, vagina, inside mouth and nose, and legs. I had blisters inside my vagina, in my eyes, hemorrhoids in my butt, bleeding in my nose, and vomiting blood daily. A million other things has happened while here the past 15 days. I have had excellent care by some phenomenal doctors and nurses and techs. I also experience pitiful care, been left unplugged for hours with no call button for help, no meds, no feeding plugged etc. I was on a catheter with a swollen vagina that burned and stung by touch. I experience for over ten days my body being burned on fired literally feeling like I'm standing in a fire place. At the same time feeling like I'm soaking in poison ivy . My entire body itches and no meds help. My internal body feels like I'm naked on a snow resort frozen. Imagine externally burning on the outside and internally freezing

One particular morning I called aunty meme and said do not talk just pray for me. She said a beautiful prayer and asked what did I need. I said I need nothing but prayer. Pray for me tonight. She said do u want me to call u or will call me. I said I will call u. I haven't slept in48 hrs and if I'm sleep I don't want u to wake me 
I had a pick in my arm that caused me pain after several days, while waiting hours for an ultrasound to get pick removed, staffed tried placing an IV unsuccessfully which cause a lightening pain up my fingers then back up my arm to my heart. I called my spouse Adrian at 5pm and told him to come to hospital immediately because something isn't right. I don't know but something isn't right in my right arm and I can't take the pain. He had to pick up our  baby at 530pm from basketball practice then he immediately rushed to hospital and arrived around 6pm. I was on video chat with my mom and dad explaining my uncontrollable pain when Adrian arrived to my room. Three minutes into his arrival, my entire body froze, I stopped speaking, I couldn't moved and I went into what an episode called a seizure. Adrian called for a nurse and response team. I was able to hear everything but not able to communicate or notify doctors I was there but not there. The energy response rushed me out for immediate testing cats scans etc. While under cat scan the 7th time this orange light zapped me and I felt like it burnttl my body and eyes. I still couldn't not talk or move to communicate to staff I'm alive, I avn hear and see but I can't talk or move. I went under cat scanner several more times. I remember seeing like 40 hospital staff around me touching me and asking me questions doing test seeing if I had any sensation in my body. I remember a butch fat manly women to the right of me that took her two hands and slammed them on my chest like a hammer two times EXTREMELY HARD LITERALLY ALMOST KILLING ME AND GIVING ME MY VOICE BACK.  I screamed STOPPPPPPED. The lady worker said " oh u can talk now, were u faking all this time" some one please find who she was because she needs to be written up and fired. That was rude and disrespectful. I prayed instantly for God to give me the strength and voice to be able to communicate. They asked me several questions like do u know ur name, say ur name, do u know the month etc.... I couldn't speak and when I did my words came out like a special person. I was able to lift one finger to tell them after each question wait hold on I'm here I'm trying but my body ain't working fully. By the grace of God, one of the doctors notice my right hand was finally moving and they said get her back to her family in ICU. I barely get out the words but I said mom call me me on speaker and tell her to pray, she'll know what I mean. My aunt answers phone at 933pm and says what's going on my mom said aunty meme don't asked questions Toya said pray and ur on speaker. I could hear the worry in aunty meme voice but she did what was asked. She gave another beautiful prayer for what seemed like 5 minutes and asked God to save me. In god's named we prayed and the whole room said Amen.  Fast forward after brain MRI, brain cat scans, ultrasounds, and a lot of other testing the next morning I woke up. I called my friend tiara at 441 am and I didn't have my full regular speech. She did not judge me she patiently let me try to talk. By 8am I was able to talk just fine like nothing happened. 

I prayed aloud in my hospital room the next night all alone and gave my testimony to God, it went something like this, father lord I come to you today and ask for to show me the way. Father lord you have almost killed me three times three days in a row (not breathing needing oxygen tube, next day choking and can't breathe on feeding tube, and third day seizure) why god why do you keep testing me. Why lord do u keep killing me and letting me live. I have been hit by a truck in 2004, I have had a period and bled for 38 days, I had a flu and was sick for 52 days, I was electrocuted on my 10th birthday, I gave birth to my daughter on Thanksgiving last year on my bedroom bathroom floor and she almost died a 4lb baby that my spouse help deliver, I had undiagnosed covid that lastest a month after giving birth and breastfed through it all, I went to work in the hospital and worked a 8 hour shift 12 hours after giving birth with a smile on my face and a million other things I can go on God I believe in u. I don't go to church but Lord I know I have a spiritual connection to you. You have alwaysade a presence in my life. I do not know the difference between Jesus, the Lord and God but TODAY I AM JESUS CHRIST. TODAY I PUT MY SELF ON THE CROSS AND WILL SACRIFICE MY LIFE SO NO OTHER HUMAN HAS TO ENDURE OR EXPERIENCE THE PAIN AND BURNING I AM GOING THROUGH. God I come to you today lord, I ask u to sacrifice me and kill me now or let me wake up in the morning father lord and anything u ask of me I will do. Any thing u show me I will deliver please father send me home to my babies. I miss my children father lord I need and want to hear their heart beat father lord. Kill me now or let me live. If u wake me up in the morning God I know and I believe you will send me home tomorrow, next week, next month or next year God. Please lord I give my life today to you lord I do not want to fight I am not strong to fight another beautiful challenge. Please lord stop testing me. Please let me go home to my children or kill me now so no one has to feel what I feel. I. God's name I pray AMEN.

Today I woke up and for the first time I truly cried, I feel sad, afraid, and scared. I asked my nurse if she can have Chaplin come into pray with me today, healing touch, and mediation come visit me, I asked for a walker and physical therapy to walk with me after breakfast. My doctor came inside my room today  and looked at me my mom and dad and said katoya what's wrong I said I'm sad, afraid and scared and everyday I have been optimistic and positive K but today there's a fog over me I can't shake and I'm trying  he said katoya, do you want to go home today or tomorrow? Man when I say God is good God is good ALL THE TIME. HE SAID
my skin looks great it's a miracle we haven't seen skin recover so quickly. Ur brain scan shows no a activity of a seizure but because you had symptoms and eye deviation and xyz Oklahoma state law state when someone experience one seizure but no further activity they are not allowed to drive for 6 months.

As long as the neurologist says I'm okay to go home I'll be coming home before Christmas. Today they took me off of all IVs and I'm taking oral medication. As long as I can take oral meds and do okay there's no reason for me to stay at hospital and I'll BE GOING HOME TO MY BEAUTIFUL CHILDREN. I will have a million follow out patient visits but world this mommy is coming home! 

In God's name is pray Amen, Amen, Amen

Please share and help by donating what you can. My treatment and medication is expensive and we want to make sure I be get to the best treatment I can. Donations will also cover food and resources for our family during this emergency. I will also need help paying for childcare for my babies while I continue with outpatient doctors appointments, brain testing, sleep/ breathing testing, physical therapy 3-4 times a week, etc.

Katoya’s direct cashapp is $AlakaisMommy

Thank you,
Katoya Unique Kinsey-Smith 

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    Katoya Kinsey
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    Edmond, OK
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