Hey everyone!!!! Rayland Camp is now 2 years old. He was born September 19, 2012. He has a very rare and fatal form of dwarfism calles rhizomelic chondrodysplasia punctata type 1. There are currently no cures or treatments. There are less than 100 cases world wide. Rayland has underwent 3 eye surgeries as well as a surgery for gtube placement. He has a hole in his heart as well. Last year in august rayland went in the hospital and was there 9 days. The 9th day he went into respiratory failure. He was put on a ventilator and air lifted from pensacola florida to shands hospital in gainesville florida. We were there until september 24th 2013. That was the longest 5 weeks of my life. Rayland has multiple doctors appointments in and out of town. He has multiple therapies as well. He has a big brother who will be 4 in november and mommy is in college to become a nurse. Grandma has been helping mommy with getting rayland to and from appointments and trying to keep rayland well. I appreciate all thats been given and all that may be given. Every little bit helps more than you know!
Thank you everyone!
Rayland also recently got a custom made back brace from shriners hospital due to curvature of his spine. He is also awaiting and MRI as well as new sleep study results. He has a sleep study in august where we learned he was having sub clinical seizures when he sleeps. So he had another one about 2 weeks ago.
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