Helping Xander for a Better Life

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120 donors
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$17,250 raised of 

Helping Xander for a Better Life

Helping Xander for a Better Life

0% complete

$17,250 raised of 

120 donations
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Hi, my name is Xander, I will be 13 in November. I was diagnosed at 4yrs old with Type 1 Diabetes. Then at 9 yrs I starting having chronic issues and was diagnosed with a very RARE disease called S.P.S. which is Stiff Person Syndrome. Even more rare in children. Only a handful of people in the world have it.....like Céline Dion and me..... We are some of the lucky ones. www.stiffperson.org and NORD – www.Rarediseases.org has more information if you want to know more about what we have to deal with. At this time there is no cure, we have to do our best to control the symptoms as they arise. We endure intense Chronic Pain and ALL kinds problems that come along with this crazy neurological, auto-immune and physiological disease. One of the extreme consequences is my hip has rotated and shorten my leg 3 inches which makes it difficult walking. I have a lot medical issues that take money and time to deal with. The expenses are many. Some things are covered with insurance; most treatments are not. We need a Service Dog to help me with daily movement, pain and at night with my diabetes. These dogs cost A LOT over $10k. Your extra $ would help me and my family greatly. Please Donate whatever you can. Greatly appreciate ANY or ALL your Help, no matter how big or small, Every Dollar counts.

Thank you from the bottom of our Hearts!
~ Xander and Pepper Family
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Organizer and beneficiary

Profile photo of Jacqui Pepper
Jacqui Pepper
Organizer
Sarasota, FL
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