Hi everyone, This is Kayden!

Kayden is a 3 year old little boy who was diagnosed with Opitz G/BBB syndrome amongst other things. He's a spunky, goofy and loving boy.

Kayden has had on going medical needs since he was a day old. From surgery, to confirmation of the syndrome to more surgeries and scopes. Opitz G/BBB is a genetic syndrome that affects the midline. (Esophagus, GI (stomach), Pulmonary (lungs), and so much more. It’s not well known, and is hard to get care for those who have it without the right resources.

Kayden’s diagnosis to date is:

-Dysphasia (Thickened fluids)

-Silently aspirates on fluids

-Stage 2 Laryngeal Cleft

-Subglottic Stenosis (scarring of tissue)

-Laryngomalacia (Chronic Stridor)

—Small/narrow airway obstruction, small openings to the lungs

August of 2025, We had a new scope done of his airway, lungs, and vocal cords.

January 2026 Kayden went to Seattle for a Type 2 Laryngeal Cleft surgery. It went well but he came home with double the amount of stitches and food restrictions. Due to this kind of surgery Kayden is still on thickened fluids. Thickener that our state will not cover.

All the funds raised will be going towards:

-Hotel stays for the trips

-Fuel costs for our trips

-Kayden’s thickner for his fluids due to them not being covered by insurance

-Any prescription costs in the event that our insurance won’t cover them

-Any special supplies that may be needed due to the surgery(s)

-Help paying bills as we take time off for all medical trips.

Thank you for taking the time to read about my sweet boy. Updates will be posted throughout this adventure.