Helping support Kai

We started having problems during pregnancy at around 4 months. These continued and we were asked to stay in Little Rock on different occasions because they wasn’t sure he’d make it once born. We went through many genetic test that were coming back negative. After birth he spent 10 weeks in the nicu. There we learned he had noonan syndrome, chronic lung disease, pulmonary valve stenosis, and is 100% gtube fed. We released two days before thanksgiving to come back 3 days after Christmas. He had a “cold” that he just wasn’t getting over. During this time I knew I could no longer work and we decided to make a gofundme. We spent a month at children’s during that stay finding out that he had leukemia. We stayed another two weeks in February due to respiratory distress. On 4/16 Kai stopped breathing while at my sisters house. We have been in the PICU at children’s for a month now. He’s set to have his heart cath 5/17 but he won’t be immediately extubated. He has started requiring more on his intubation in the last day. We’re looking at a little longer here and we appreciate everything. ❤️