Helping out Nixxon



Little Nixxon has a really rare neuromuscular disorder called SMA. Among other things, SMA is makes his muscles weak and leaves him really susceptible to pneumonia.

On Thursday, September 14th, he came to Sick Kids where his Mom and Dad were given the news that there is a brand new drug called Spinraza that can help treat the disorder and give him a chance at a longer, richer life.

Unfortunately, on Friday September 15th, Nixxon started deteriorating... rapidly. He was rushed to Sick Kids hospital where an amazing team of medical professionals has stabilized him and started putting him back on the track to recovery. But it's a slow, drawn out process.

They had to intubate him in order to give him a fighting chance, and for SMA babies, it's a real struggle to get them back off the ventilator.

But he's getting stronger. There's a real hope that he'll pull through. However, the road is long. Recovery is going to be an uphill battle and it may be weeks before he's able to go home -- if he's able to go home.

Ronald McDonald House has a space inside Sick Kids where his parents can stay. But even with their housing covered, they're incurring a lot of expenses staying here. Eating, paying for parking, toiletries and other sundries all add up. Tyler is missing out on his income and they still will have bills to pay no matter what the outcome of this ordeal is.

That's why we're asking you to open your heart to this young family and help out in any way you can.
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  • Beverly Hilder 
    • $20 
    • 48 mos
  • Sinharib Dinkha 
    • $50 
    • 49 mos
  • Anonymous 
    • $50 
    • 49 mos
  • Darlene Lima 
    • $50 
    • 49 mos
  • Jennifer Marche 
    • $50 
    • 49 mos
See all

Organizer and beneficiary

James Waters 
Organizer
Toronto, ON
Victoria Ciappara 
Beneficiary
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