Hi everyone. This was something I was hoping I'd never have to do. Life throws us some pretty messed up curveballs sometimes. If you've followed on fb you've read that I've been having some issues with memory, falls, going places with no recollection of being there.... etc. This has gotten worse in the last few months. What i have all done so far. MRI of the brain- normal. EEG- normal. SLEEP STUDY-don't get me started on this. To say I have sleep apnea when I didn't sleep at all during the test sure rubs me the wrong way. But I'll listen. EAR NOSE AND THROAT- this is where I've finally gotten some direction. I had a CT SCAN done on a small bone in the inner ears called the ORBIT SELLA, and as it turns out the left ear it's almost gone and the right ear is deteriorating as well. This is causing the dizziness and constant ringing. Unfortunately there's no sure fire way to fix this and surgery doesn't guarantee a fix. Pretty major surgery as well. But i have a referral going to Madison to consult with the specialist there to see what options are. Next is a referral to a sports based neurologist in Milwaukee to see about POST CONCUSSION SYNDROME. Which I've been pleading to see since day 1. Theres some direction here finally.
The reason I've finally decided to make this is I'm asking for help so I can fight this thing. I've always been a fighter but I don't know how to fight this alone. These issues have cost me several jobs and im in the works with trying to get disability until I can get things better enough to work. I absolutely hate doing this but any contribution would be greatly appreciated. The dr bills are stacked. I love you all.
Update.... I have been turned down by 2 different post concussion drs without even being seen. I met with an ear nose and throat surgeon who has agreed that I need to see the post concussion dr before we consider treatment for the ringing.... but it's been impossible to get into one. We waited 3months for approval from Milwaukee just to have them deny seeing me without so much as a courtesy call to tell me. This fight is beyond what is going on internally... it's against the system too....
Update may 2026.... still fighting to get results from both neurologist and disability. Damn the system for the way they treat people. I have done everything and I mean EVERYTHING they have asked. My initial claim was denied and I have been out of work for well over a year now. Just insane how they treat people. Anyway. I've been put on several medications to help with headaches. None help. I am however doing physical therapy for concussion syndrome and it has its ups and downs. I had a big bump in the road with my shoulder locking up due to deteriorating tendons and bad arthritis. Shocker I know. Getting that worked on as well. I'm trying so hard and it seems like all they want to do is take from me. Rant over. I love you all.






