Helping make memories, private health, aids and equipment

Hi this fundraiser is for our beautiful daughter nevaeh-hope,

nevaeh has many complex health conditions after she sadly contracted group B strep wich changed to sepsis and meningitis this then led to cerebral palsy, a disabled esophagus, severe dystonia and most recently hospital stays following unresponsive episodes? She’s also under genetic investigation we’re not sure what’s yet to come when it comes to nevaehs health everything has been so touch and go,

we are making this acount to help with the costs of simple things like being able to make memories with our precious girl, private health care for these appointments that are far too in the future for nevaeh, eg her gastrostomy, fundo, and more to come

nevaeh wears specialist boots she cannot yet walk or stand alone but these shoes help her immensely you can only have one pair on the nhs as these are very costly however like every other child that has a choice I feel nevaeh deserves a choose too,

hydro therapy pools would help nevaehs dystonia and tone and also her pain but as everything else this comes with a huge cost with travel included,

nevaeh is solely ng fed, wich comes with its very high risks while she waits the list of the gastrostomy this could be years or months with your help,

nevaeh is on a very long list of medications that her body needs daily to function, I’d love to be able to provide more support to nevaeh with daily living equipment that we can’t fund on the nhs, walking aids and days out to make her life more enjoyable

she’s our entire world and all your help is immensely appreciated our little girl is 18 months old and is a wheelchair user she’s our little warrior.