Update - This is the only fundraising page for Duy, should anyone come across another page please report
Hi Everyone,Some of you may or may not know Duy. He is a 14yr old boy that is only our bundle of joy. Duys medical needs can be quiet complex, he is confined to his wheelchair full time, is non-verbal and requires 24hour assistance and care. He also suffers from N88 Epilepsy since he was a baby having about 20+ seizures a day to roughly 2 a month at present which are very aggressive seizures taking its toll on his small body and we are adjusting his medication. Duy also has the following conditions: Cyclical Vomiting Syndrome, Global Developmental Delay, Microcephaly, Cerebal Palsy, Athetoid Quadriplegia and now a mild form of Scholosis.
Updated ^^^^ We were fundraising for a new wheelchair accessible car for his needs as our current car was at the end of its lifespan. Having the adapted car allows Duy to get to all the places he needs to go to especially his hospital appointments. With our old car we almost had to avoid the ramps on the roads as the exhaust was constantly falling off, the back floor was slowly dropping where we were fearful it may give way at some stage leaving us with no car for him. With your help and massive donations and with a hefty bank loan we were able to buy Duy a brand new adaptable van so we thankyou so much.
Thankyou for your assistance to date. Its hard to ask for the funding for the help but with the high costs of adapted vehicles we simply couldnt do it on our own.
At present Duys equipment is currently funded by the H.S.E. but theres certain elements of equipment that Duy uses in school that Duy could use for communicating at home and with your assistance and help we could get these for him. We would love to be able to purchase an eyegaze for him that he can use soely using his eyes costing around 25 thousand euro, to include this we would endeavour to also look at equipping a soft play area where he can chill out of his wheelchair and a secure sling that Duy can sit unaided in a car seat and the patrol car and van with his colleagues.
We are also looking a few steps forward to getting Duy a ceiling hoist that would hoist him from his chair to his bed and then into his wetroom, this would be a permanet fixture to his room along with a showerbed to shower Duy and make caring for him that bit easier.
We cannot thankyou enough for reading this and helping us to support Duy and his needs moving forward in life. Dont forget to follow his journey on Facebook and instagram - Honorary Garda Duy. Please share this fundraiser with family, friends, work colleagues etc.
We welcome anyone wishing to run or part take in a fundraiser to help us reach our goal, please help us to help Duy. Thankyou