Most of you are aware that our little girl Eleni has fallen on hard times and so far doctors and specialists have been baffled as to what is the cause!
On the 6th August our little Eleni had a 35min seizure so she was admitted to hospital for 5 days with every test run (scans, urine, blood) and we were given no answers as to what caused it so she was sent home with some medicine just in case a seizure happened again before an ambulance would arrive.
On 26th August Eleni had another 32 minute seizure and the medicine that went home with her did nothing to stop it before the ambulance arrived so she was given a dose higher than an adult would normally be given. A further week later of tests (mri, lumbar puncture, blood, urine) and Eleni stabilised and was sent home again with NO ANSWERS other than the possibility of Eleni’s parents doing a test to rule out anything hereditary however nothing they know of would cause such a thing in their 7.5month old daughter.
On 17th September, Eleni started having a seizure while she was being held (no fever, no trigger to it) and this one lasted for six hours and she is now in intensive care.
We are very worried for our brave little girl and this has caused her parents, Kit and Kat a lot of time off work, lots of hours of sleepless nights and are now being told they need to do a gene test which will send samples of their blood to USA to eliminate any hereditary factors as to what could be causing these seizures as she does not have epilepsy. The hospital is covering some of the costs for this test but they have been given a figure of between $3-7k that they will need to cover as the gap.
This is a large amount and our proud parents never ask for help even when they need it so I’m asking you please to send love and prayers their way and any small amount you can donate to help with these costs will be greatly appreciated.
Or directly to Eleni’s family:
Asking with much love,
Hope and Shana
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Fundraising team: Eleni’s Aunties (2)
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